Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA

 

News & Press Releases

Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.

 

2nd International Ataxia Research Conference - September 27-30, 2017 - Pisa, Italy

The 2nd International Ataxia Research Conference will be held on September 27-30, 2017 in Pisa, Italy. The focus of the meeting is a comprehensive scientific review of new research from disease definition to therapeutic treatments. The conference will include Friedreich’s ataxia and other recessive ataxias (eg: ataxia with oculomotor apraxia), dominant ataxias (eg: spinocerebellar ataxias, DRPLA, episodic ataxias) and autoimmune ataxias.

Family, neighbors unite to fight genetic disorder


Kristin and Ben Morrow, of Anneslie, invite you to attend a free private screening of an award-winning documentary, "The Ataxian," at The Senator Theatre on Thursday, Jan. 12 at 7:00 p.m. The feature-length film captures athlete Kyle Bryant during the Ride Across America bike race, a grueling nine-day journey from Oceanside, California to Annapolis, Maryland.

Read the full article HERE

The latest Advocate Newsletter is available

The Winter 2016 - 2017 Advocate is now available.

The Advocate is FARA's newsletter. It provides updates on FARA's activities including funded research, scientific conferences, and fundraising events.

Click HERE to view our latest Newsletter
 

FARA Job Posting: Patient Engagement Director

Click to view PDF
FARA is seeking a full time Patient Engagement Director.

Please click HERE for more information.

New York Times Review: A Race to Raise Awareness in ‘The Ataxian’


A couple of years back, the ice bucket challenge was a social-media sensation, raising an estimated $115 million for research into amyotrophic lateral sclerosis, or Lou Gehrig’s disease.

Not all such ailments receive that kind of visibility — or promotion. Friedreich’s ataxia, a little-known, progressive, fatal neuromuscular disease, has no cure; most heartless of all, its onset usually occurs in young children, who are unlikely to reach the age of 30.

Read the full article HERE

Page 1 of 75

SHARE

FacebookTwitterLinkedinShare on Google+
Family B.jpg

News & Press Archives