FARA News
2013
May 17, 2013
Swimming for a cause, swimming for family
Swimming for a cause, swimming for family
April 30, 2013
Race for Christina to support Friedreich's Ataxia Research
Race for Christina to support Friedreich's Ataxia Research
April 26, 2013
Riding through to strength
Hand cycling brings direction for Lauren Williams
as she lives with a degenerative nerve disorder
Riding through to strength
Hand cycling brings direction for Lauren Williams
as she lives with a degenerative nerve disorder
April 11, 2013
Save The Date! Oct 14, 2013 - 6th Annual FA Symposium
Children's Hospital of Philadelphia
Save The Date! Oct 14, 2013 - 6th Annual FA Symposium
Children's Hospital of Philadelphia
April 4, 2013
"Concert for a Cure" FARA benefit
Univ. of Rochester Yellowjackets sing their way into our hearts
"Concert for a Cure" FARA benefit
Univ. of Rochester Yellowjackets sing their way into our hearts
March 28, 2013
Annual run spreads awareness for rare and lethal disease
Annual run spreads awareness for rare and lethal disease
March 28, 2013
Research fundraiser more than doubles goal
Research fundraiser more than doubles goal
March 21, 2013
College student poses challenge to life-threatening disease
College student poses challenge to life-threatening disease
March 12, 2013
Just Like Me: The Taylor Family Foundation
Just Like Me: The Taylor Family Foundation
March 10, 2013
Young Woman With Rare Disease Cycles through Denton
Young Woman With Rare Disease Cycles through Denton
Related Story: Rider Not Letting Ataxia Stop Race For Awareness
February 28, 2013
Rare Diseases Touch Lives
Rare Diseases Touch Lives
February 26, 2013
High school faculty raises money for student's disease
High school faculty raises money for student's disease
Related Story: Kid to Know's resilience inspires others
February 18, 2013
Press Release:
Announcing "Move YOUR Way" Initiative for Rare Disease Day
Virtual Event to Raise Awareness Taking Place February 21- 28
Press Release:
Virtual Event to Raise Awareness Taking Place February 21- 28
February 12, 2013
Action Alert:
Write your Senators & Congressperson in the next 24-48 hours about NIH and FDA budget cuts
Action Alert:
Write your Senators & Congressperson in the next 24-48 hours about NIH and FDA budget cuts
February 7, 2013
Team FARA's Beth Bax raises awareness for FA in the LA area
Team FARA's Beth Bax raises awareness for FA in the LA area
February 6, 2013
EPI-743 Clinical Trial begins at UCLA and CHOP
Enrollment at UCLAEnrollment at CHOP
EPI-743 Clinical Trial begins at UCLA and CHOP
Enrollment at UCLA
Enrollment at CHOP
February 5, 2013
(Watch on YouTube)
Thank you Tampa Bay Lightning for raising incredible awareness of FA!
(Watch on YouTube)
Thank you Tampa Bay Lightning for raising incredible awareness of FA!
January 30, 2013
Industry lends muscle to genetic disease
Industry lends muscle to genetic disease
January 21, 2013
Tennis Channel coverage of Fara's Ace for a Cure w/ John Isner
Tennis Channel coverage of Fara's Ace for a Cure w/ John Isner
January 9, 2013
PSHS student looks to help cure disease
PSHS student looks to help cure disease
January 7, 2013
Press Release:
FDA Recognizes 30 Heroes Changing Lives of Those with Rare Diseases - FARA President and Co-Founder to be Honored
Press Release:
FDA Recognizes 30 Heroes Changing Lives of Those with Rare Diseases - FARA President and Co-Founder to be Honored
January 5, 2013
Student Helps Bring Awareness to Disease
Student Helps Bring Awareness to Disease
January 5, 2013
Hernandez makes the best of life
Hernandez makes the best of life
January 4, 2013
Doctor Radio Interview Featuring Kyle Bryant and Dr. Dave Lynch
Doctor Radio Interview Featuring Kyle Bryant and Dr. Dave Lynch
January 3, 2013
Counting her Blessings: Islander lives with Friedreich's ataxia
Counting her Blessings: Islander lives with Friedreich's ataxia
January 2, 2013
Recruitment Notice:
USF Ataxia Research Center announces enrollment for a phase 2B EPI-743 trial in FA patients
Recruitment Notice:
USF Ataxia Research Center announces enrollment for a phase 2B EPI-743 trial in FA patients
info@cureFA.org|www.cureFA.org|(484) 879-6160