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FARAFARA Cure FA

Emotional Homecoming Crowning Brings Awareness

Congratulations to Kyle Waterman, crowned Homecoming King at Linn-Mar High School in Marion, IA. Kyle is also currently enrolled in a clinical trial for Friedreich's ataxia and used his homecoming crown to spread awareness. With so many working together, research continues to move forward! KCRG ABC 9 shared Kyle's story.

Read the full article HERE.

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The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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