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FARAFARA Cure FA

FARA receives 2016 NORD Rare Impact Award


FARA President- Ron Bartek, Board Chair- Paul Avery and Spokesperson- Kyle Bryant accepting the Abbey S. Meyer's Leadership Award at the National Organization for Rare Disorders, Inc. (NORD) Rare Impact Awards gala last night from NORD Board Chair Dr. Marshall Summar and President/ CEO Peter Saltonstall.

“A rising tide will lift ALL our boats,” says Ronald Bartek, President and Co-Founder of FARA. Through partnerships with NORD and other NORD membership organizations, the Alliance for a Stronger FDA and Research!America, FARA advocates to advance and accelerate therapy development for all diseases. For two consecutive years, FARA staff and volunteers have led state house events across the country for Rare Disease Day®. Their engagement helped make Pennsylvania’s event one of the largest, and has led to the establishment of a new Rare Disease Caucus.

Thank you to NORD for this great honor and to our FA community for making a real impact on rare disorders.
· About the NORD Rare Impact Award
· May 17th Presentation Text

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