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FARAFARA Cure FA

'If I can affect change in other people’s live ... that can be really powerful'

When you first meet Sam Bridgman, you notice how much he smiles and laughs.

“I really strive to live life to its fullest,” the 22-year-old Portland man said.

But no matter how upbeat he is, he still thinks about how things used to be.

“I played all sports,” he said. “Baseball, basketball, I tried soccer, flag football. Anything you can say, I pretty much did it.”

He can’t do much of that today because he’s confined to a wheelchair.

When Sam was a teenager he was diagnosed with a strange disease called Friedreich’s Ataxia, or FA for short. It’s a degenerative neuromuscular condition that affects coordination.

It’s so rare, there are only about eight people in the Portland area who have it. Those who are looking for a cure are holding a big fundraising event this weekend.

Read More: 'If I can affect change in other people’s live ... that can be really powerful'

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