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FARAFARA Cure FA

Sigma Phi Epsilon Raising Awareness and Research Dollars

FARA is excited to be working with the brothers of Sigma Phi Epsilon at Quinnipiac University in Hamden, Connecticut, and veteran fundraisers Sam and Alex Bode, and FARA founding board member Mary Caruso on rideATAXIA+ CT.
 
This 10 mile bike ride fundraiser is in honor of Joey Mullaney, a member of Sigma Phi Epsilon at Quinnipiac, and Sam and Alex Bode.
 
The brothers have been getting a lot of attention lately because of a video they made about helping Joey to the top of a peak near campus:

 

 
 
 
rideATAXIA+ CT will take place on  October 11, 2015.  For details about the event please visit rideataxia.org/plusct.
 
About rideATAXIA+
 
rideATAXIA+ seeks to empower local communities to organize neighborhood bike rides to raise funds for FARA's mission to treat and cure FA through research. In the spirit of rideATAXIA, these grassroots rides include participants of all abilities with route distances of 10 miles or less on a bike trail or low traffic neighborhood roads. Each ride is followed by a gathering to celebrate the camaraderie that drives us toward the ultimate finish line - treatments and a cure.

 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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