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FARAFARA Cure FA

The Alliance’s 'member spotlight' is currently shining on …

FARA ADVOCATES FOR PATIENTS …

FARA (the Friedreich’s Ataxia Research Alliance) advocates for the thousands of children and adults across the United States who were born with Friedreich’s ataxia and are fighting this disease bravely but dying young because they currently have no treatment. FARA is an IRS-recognized public charity that funds medical research aimed at treatments and a cure for Friedreich’s ataxia — a rare, hereditary, debilitating and life-shortening neuromuscular disorder.  Childhood onset of symptoms usually occurs between the ages of 5 and 15 and includes loss of strength and coordination in the arms and legs requiring early, full-time wheel chair use in most cases; impairment of vision, hearing and speech; aggressive scoliosis (curvature of the spine); energy deprivation; diabetes, and severe heart disease that frequently is the cause of early death.

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