4th Annual United Against Ataxia Hill Day
Wednesday, September 21, 2022
Virtual Event
We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities. Representatives from NAF and FARA will schedule meetings with Congressional members to discuss issues important to the Ataxia community.
News & Press Releases
Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.
SAVE THE DATE! United Against Ataxia Hill Day - September 21, 2022
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Join Us in May for the FA Research Flash Talk Series!
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FA Research Flash Talk Series
In honor of FA Awareness month in May, FARA is proud to present: The third annual FA Research Flash Talks series - featuring Young Investigators from FARA funded laboratories around the world. This four-part series will cover key aspects of FARA funded research from gene silencing and disease mechanisms to therapeutic avenues and clinical insights. Each session will include Flash Talks from five Young Investigators (ie, postdocs and graduate students) and will be moderated by an FA Community member. Each Flash Talk will be limited to a maximum of five minutes and a single PowerPoint slide and will be suitable for a lay audience. We will also allott time for a brief Q&A following the talks.
THURSDAYS @12 NOON (ET)
MAY 5TH
MAY 12TH
MAY 19TH
MAY 26TH
Click the button below to register for one, two, three, or all four of the sessions. You will have the option to select which sessions you wish to attend.
Monthly Update - April 2022
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This monthly update contains updates from several pharma companies developing therapies for FA as well as notices for enrolling clinical trials. It is an exciting time for FA research. We recognize that the decision whether to participate in a trial is a significant one, requiring both a travel and a time commitment. Our aim is to help provide you with the information to help make an informed decision. Thank you to everyone who has given clinical research participation careful consideration. Together, we will treat and cure FA!
Sincerely,
Jen
Jennifer Farmer,
FARA Chief Executive Officer
Other topics in our April Monthly update:
- Pharma News
- FA Patient Symposium
- Minutes of Science
- Ataxia Athlete Initiative (AAI)
- Open & Enrolling Studies
Friedreich's ataxia Community Research News - April 2022
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This month's Update for Researchers covers the following topics:
- New Funding Opportunities for Friedreich Ataxia Research from the DoD
- ICAR 2022
- Pharma News
- Meet the Community
- Recent FARA Funded FA Publications
- Recent FA Publications
- The FARA Forum Webinars
- FARA Newly Awarded Research Grants
- Meetings of Interest to the FA Community
- Grant Opportunities
Minutes of Science - Episode 11: Role of Iron in FA
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Check out the latest episode in the Minutes of Science series!
Episode 11 talks about ferroptosis - a process of cell loss dependent on iron.
View the full playlist