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FARAFARA Cure FA

Our Partners

FARA partners with government agencies, corporations, and advocacy groups that support scientific research aimed at finding treatments and a cure for Friedreich’s Ataxia.

We are very grateful for the support from all of our Partners.

2015 Partner of the Year

FARA is pleased to announce that the recipient of the 2015 Partner of the Year award is Amalie Oil and the Barkett Family. For many years, they have exceeded the criteria for the award including:

   · Leadership and/or employees/constituents within the partner organization are directly supporting FARA’s mission and demonstrate a commitment to curing FA faster than thought possible(e.g., fundraising, in-kind contributions, professional services, etc.).
   · Organizational culture that values community, helping others, volunteerism.    · Commitment to increasing awareness of Friedreich’s ataxia or FARA.

As a family-run business, Amalie Oil and the Barketts have demonstrated a strong commitment to community by giving their time, talent and treasure to support FARA’s mission. The Barketts have been long standing members of the planning committees for both the FARA Energy Ball and Ace for a Cure tournament. Members of the Barkett Family roll up their sleeves to volunteer at several Tampa area fundraisers including registration at the Pull for a Cure event, auction preparation for the FARA Energy Ball, and event planning for Ace for a Cure. Additionally, Amalie Oil has repeatedly been a presenting sponsor of the Ace for a Cure tournament, silver sponsor for the Energy Ball, and a lead contributor to the Fund a Cure initiative at the FARA Energy Ball. As individuals, a family, and a company, the Barketts and Amalie Oil have championed FARA’s cause and been valued partners in our efforts to advance FA research to meaningful therapies to people living with FA.


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2015 Partner of the Year

2015 Friend & Ally - Sandy Callaghan

Non-profit Advocacy Partners

The National Institutes of Health (NIH) is the premier US federal government entity responsible for biomedical research and is the world's largest funder of such research. FARA works very closely with the NIH in many ways. FARA has provided grants to a number of scientists that have used that support to develop the preliminary data they needed to submit successful applications for much larger NIH grants. FARA leadership has served on the National Advisory Council of the NIH National Institute of Neurological Disorders and Stroke and continues to participate in the Council's public meetings. FARA leadership has, at NIH request, made a number of presentations at NIH public forums involving other advocacy organizations, other federal agencies, and representatives of the biopharmaceutical industry. FARA has been active in helping rally public support for the NIH -- twice testifying before congressional appropriations committees to encourage more robust budgets for the NIH and working closely with other organizations such as Research!America in building additional public support for the NIH. To learn more about FARA's relationship with the NIH and FARA's effort to rally support for the NIH, visit our Advocacy page.

The Food and Drug Administration (FDA) is the U.S. regulatory agency for food and medical therapies. FARA collaborates with the FDA to help educate FA scientists, pharmaceutical partners, and patient families regarding the regulatory process and to help educate the FDA regarding FA so as to maximize the prospects for successful development and approvals of FA treatments. FARA is also active in advocating for a more robust FDA budget, working closely with the Alliance for a Stronger FDA and Research!America.

Media Partners

FARA Friend & Ally award

The FARA Friend and Ally award is presented to volunteers within the FA community that lend their time, talent, and countless hours in support of FARA's mission to find treatments and a cure for FA.

2015 - Sandy Callaghan

FARA is honored to present the 2015 Friend and Ally award to Sandy Callaghan. Sandy started as a good neighbor but quickly became a treasured friend and longtime ally of FARA. Upon learning that a family in her neighborhood was living with Friedreich’s ataxia, Sandy teamed up with Roger Cypriano and Avila Golf & Country Club to initiate the first Ace for a Cure event in 2009. Sandy has been at the helm of this event ever since then. Sandy’s efforts for FARA grew into a year-long endeavor when she joined the FARA Energy Ball planning committee and became a critical member of the auction committee.
Sandy invests long hours behind the scenes ensuring the success of her events. In the many years, FARA has called her a friend, she has never sought recognition or anything in return. Sandy has remained a constant, quiet presence with work ethic beyond measure. We are truly honored and grateful to call Sandy both a Friend and an Ally.

2014 - Tom & Dede Bradley

2013 - Herman & Tanya Fernandez - Lawrence Phillips

2012 - Broadreach Televsion - Rod Clingaman - Ava Forney

2011 - John Jackson - Crystal Wade

2010 - Mary Brown - Blair DeSaw - Julie Robertson

2009 - The Cast and Crew of the Cake Eaters

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Partner of the Year Selection Criteria

  • Leadership and/or employees/constituents within the partner organization are directly supporting FARA’s mission and demonstrate a commitment to curing FA faster than thought possible(e.g., fundraising, in-kind contributions, professional services, etc.).
  • Organizational culture that values community, helping others, volunteerism.
  • Commitment to increasing awareness of Friedreich’s ataxia or FARA.

FARA Friend & Ally award

The FARA Friend and Ally award is presented to volunteers within the FA community that lend their time, talent, and countless hours in support of FARA's mission to find treatments and a cure for FA.