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FARAFARA Cure FA

Friedreich's Ataxia Research Alliance is committed to respecting and protecting your privacy. This Privacy Policy explains what we do with the personal information that we collect from you. If you have any questions or concerns regarding this policy, please contact us at info@curefa.org.


What Information Do We Gather About You?

Friedreich's Ataxia Research Alliance collects information about our readers so that we can provide a more interesting and useful service. We ask for your name, email address, and other personal information when you register to use certain features of our Web site, when you become a member. We also may ask for this information at other times, such as when you enter contests or other promotions sponsored by Friedreich's Ataxia Research Alliance and/or our partners. We sometimes conduct surveys as well, although you do not have to respond to them.

We collect IP addresses for site security and to help us understand how people use our sites so that we can improve our sites and our users' experiences. For similar quality reasons, we use a feature known as a "cookie." Cookies contain bits of information that websites transfer to your computer's hard drive for record-keeping purposes. Cookies can make the Web more convenient by storing information about your preferences on a site. Although we may assign your browser a cookie, the cookie does not tell us who you are. Only you can tell us that. We discuss cookies later in this Privacy Policy.

When you place an order for a product or service, we need to know the sort of information typically used for credit card transactions, such as your name, address, telephone number, and credit card number and expiration date. We will use your information to contact you regarding your order if necessary. We encrypt all of this information using Secure Socket Layers (SSL) technology.

Besides cookies, we may also use tiny electronic images (called "single-pixel GIFs" or "Web beacons") in the following ways:
To count and recognize users.
To conduct research on behalf of some partners on their websites, and for auditing purposes.
To determine aggregate information about users, including demographic and usage information.
To determine which email messages were opened and/or acted upon when we send HTML-formatted email messages (messages resembling Web pages that include graphics).

Our sites are not directed at children under the age of 13. We operate our sites in compliance with the Children's Online Privacy Protection Act and will not knowingly collect or use personally identifiable information from anyone under 13. If a parent or guardian becomes aware that his or her child has provided us with Personal Information without their consent, he or she should contact us at info@curefa.org. If we become aware that a child under 13 has provided us with Personal Information, we will delete such information from our files.

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