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Here are some links to resources for additional information regarding patient registries and clinical trials. Some of the sites allow you to search current clinical trials for a specific disease and other sites only provide information. |
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Registries |
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www.cooperative-ataxia-group.org/participate.htm
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The National Ataxia Registry serves people who have been diagnosed with Hereditary or Sporadic Ataxia. This is a link to another patient registry for patients with all types of ataxia. We encourage individuals with FA to consider participation in this registry as well as the FARA patient registry. |
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Clinical Trials |
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www.clinicaltrials.gov -
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. This site also has educational information about clinical research. |
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www.centerwatch.com -
CenterWatch.com is a Clinical Trials listing service. You can use this site to find a wealth of information about clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA. |
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www.clinicaltrials.com
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CLINICALTRIALS.COM™is a source for comprehensive information for current clinical trials being conducted nationwide. This site has contact information for more than 30,000 health agencies and support groups across more than 3,000 cities in the United States. |
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www.fda.gov/oashi/clinicaltrials/default.htm -
A website from the US Food and Drug Administration (FDA) with information about clinical trials. |
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www.clinicalstudyresults.org
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The ClinicalStudyResults.org site is a central, widely accessible, web-based repository for clinical study results in a reader-friendly, standardized format. |
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