Research and clinical programs

The Friedreich's Ataxia Research Alliance (FARA) is dedicated to the pursuit of scientific research and pharmaceutical development leading to treatments and a cure for Friedreich's ataxia. For research, development and clinical scientists driven to be part of a collaborative, innovative and successful medical community, FARA is a source of funding, resources, and individualized connections that accelerate progress and results. FARA’s formal support for this community is demonstrated by our grant program, scientific conference program, translational and drug development resources, patient registry, and clinical infrastructure. FARA is also readily accessible and responsive to individual inquiries and requests from scientists and pharmaceutical partners for such services as the identification of collaborating investigators, acquiring the appropriate mouse and cell models, disseminating information to the patient community, facilitating supportive relationships with Government agencies and FARA’s non-profit funding partners, etc.

FARA can assist physicians and other healthcare providers treating individuals with FA by:

  • Connecting them to FA specialists to help instruct best care management for patients
  • Helping them get their patients registered in the FA patient registry
  • Providing information on active and upcoming clinical trials
  • Assisting with patient referrals to network centers running clinical trials

Our goal is to support the FA scientific, pharmaceutical and medical community with the tools necessary to execute their best work and improve patient outcomes.