Patient & Family Resources

Navigating the terrain of a new diagnosis or a new development in an existing disease can be overwhelming.  When traveling through new territory, it is helpful to have a map or a guide.  In an effort to create such a tool, FARA has outlined some fundamental information about Friedreich's ataxia as well as the drug development and clinical trials process.

To help you chart your own course alongside the latest research findings, there is also information about the FA patient registry and recruitment for active clinical trials.

Along with your "map," it is also good to connect with people who have either traveled the road before you or are traveling it along with you.  FARA has also included the profiles for some individuals with FA as well as links to support groups.

Find FARA on these sites:

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