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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

2017 rideATAXIA Orlando

rideATAXIAO2017The 7th Annual rideATAXIA Orlando was held on November 12, 2017 at Waterfront Park in Clermont, FL. This event is always near and dear to my heart because I have family in Orlando, and we been involved with it since the beginning. This year was really exciting for me; as I rode my own recumbent hand cycle. I also gave a speech as a FARA Ambassador about my personal experience with FA, the encouraging progress of FA research, and most importantly a sincere thank you to the participants of the event.

It was a FAntastic day that welcomed over 250 riders and raised over $100,000. The weather was perfect for riding…warm with a cool breeze around the lake. As usual the food from Outback and Carrabas was delicious! The menu consisted of steak, chicken Marsala, macaroni and cheese, rigatoni, broccoli, and Cesar salad. Cycle Ataxia sponsored the Orlando ride for $10,000. Created in Ireland by Barry Rice, Cycle Ataxia exists to raise funds for FA research. We were honored to have Barry and his father join us for the ride. 

Kyle Bryant announced the top fundraisers for the day, I spoke on behalf of the FA community, and Paul Avery, chair of the FARA board, talked the crowd for a few minutes. FARA supporter Tom Bradley led the crowd in a bidding rally at the end to successfully put the fundraising effort over the $100,000 mark. It was a great way to energize and involve the crowd. Overall, it was a FAbulous day, and I can't wait until the next rideATAXIA Orlando!

8th Annual rideATAXIA Orlando. Saturday, November 10, 2018. Waterfront Park. Clermont, FL. Mark your calendar and join us! rideATAXIA.org/orlando

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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