Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

rideATAXIA Chicago 2016

2016rideATAXIAChicago1

It was the 5th year for rideAtaxia Chicago and I have been lucky to go to two of them. Each time I go I have more fun and meet more awesome people who are supporting FARA to cure FA. It was a huge success raising over $90,000 and run by FARA and great FAmilies like the Young family and their friends who go all out for the event. If you’ve never been to a ride it’s an amazing experience. We came over from FA Woodstock which made the weekend even more fun and it was very exciting when we arrived to meet representatives from Horizon Pharma and Reata Pharmaceuticals who have drugs in clinical trials for FA and came out to support our community. 

2016rideATAXIAChicago2One of the many teams that participated this year was my Dad and my brother, Colin. Their team name was 3 Wheels, 2 Guys, 1 Cure because of the amazing, (insane even) bike that my Dad was riding on the 12 mile course ….Bike might be a bit vague though. How about unicycle?! Yes, even though he had almost no training on his new 36” unicycle leading up to the event, he toughed out the 12 mile course with no coasting and only a few scrapes and bruises. It turns out trees along bike trails aren’t trimmed to unicycle height! I hung out at the finish line and cheered them across and then it was on to the food (AWESOME FOOD thanks to Bonefish Grill, Carrabba's Italian Grill and Outback Steakhouse!), fun and a chance to spend some time with each other. Dr. Payne was there with his daughter for the ride and he spoke about how the money raised through events like rideAtaxia Chicago is making a real difference directly in his research and for many other scientists. A powerful message indeed.

All in all, the best part of day for me was connecting with my FAmily for another truly amazing experience. I hope to see you all next year!

2016rideATAXIAChicago3jackdewittcommunitysignatur


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

More articles from this author

SHARE

FacebookTwitterLinkedinShare on Google+
Event A.jpg

Subscribe to
the Ride Ataxia Blog

Get new posts from the Ride Ataxia Blog sent directly to your inbox


 

 

Archived in
  the Ride Ataxia Blog