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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

 

rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

Ataxian Athlete Initiative Announces 2015 Recipients

 

The Ataxian Athlete Initiative (AAI) provides adaptive cycling equipment to people with any type of ataxia who have demonstrated the desire to stay active and healthy despite their disabilities. This year, the AAI was sponsored by our partners at Catrike, The FA Project, The Texas Irish Foundation, and a contribution in memory of Gladys Lacativo.

FARA is pleased to announce the 2015 AAI grant recipients: Lee Bailey of Melbourne Australia, Marcos Alfonso Garcia Campo of Barcelona, Spain, Mandy Davis of Clinton, MO, Tiffany Gambill of Bridgewater, MA., Sean Mazeres of Woodland, CA, Kimberly Welch of Bridgeville, PA, and Billie Wells of Southfield, MI.

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Read more: Ataxian Athlete Initiative Announces 2015 Recipients

2015 rideATAXIA NorCal

On May 17th, my friends from Sharon’s Lounge in Rancho Cordova, CA held a spaghetti fundraiser for my team (Team Megan) and rideATAXIA NorCal. My good friends Terry Barragan, Joe Gough, Sharon Juarez, and Karen Hannum all played proactive roles in planning. As friends piled in and we all enjoyed the spaghetti and other goodies donated by people, I looked around in awe by everyone that was there for me. I know that weekends are especially busy for people, and for them to still make it meant a lot. As the afternoon went on, my other good friends Cort and Margie Stratfull did their always entertaining karaoke and added a special twist to it. This included people donating to get other unsuspecting individuals to sing. It was hilarious! All in all the event raised $1,112 for my team. My favorite part of the day was just catching up with everyone and thanking them for coming. I now feel motivated to keep doing events like these.
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Read more: 2015 rideATAXIA NorCal

A Guide to Beginning Your Search For Adaptive Cycling Equipment

**Note: This article is focused on individuals affected by FA but aspects of this article may relate to many other conditions with symptoms that include compromised balance and coordination.**

It is likely that every person with Friedreich's ataxia (FA), Ataxia, or any neuromuscular disease with no current treatment or cure has heard it many times before "Exercise is the key to staying healthy and may even slow down the progression of the disease."

With obvious positive physical and mental effects, exercise is the main treatment that is available to us right now. However there are many factors such as accessibility, availability, and cost that limit exercise. Adaptive cycling is one of the most accessible forms of exercise because anyone can do it as long as they have the right equipment. For someone living with Friedreich's ataxia (FA) who would like to try adaptive cycling, the first question is:

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Read more: A Guide to Beginning Your Search For Adaptive Cycling Equipment

Ride Ataxia Philly Promo Videos

We are incredibly grateful to our Media Partner, PHL 17 for an outstanding job on three promo videos leading up to the Philly ride. Check them out. Thank you Jennifer Lewis-Hall and team!

 

 

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Ride Ataxia funded research. MRI biomarker study at UMN

Kyle PegBoardEach year FARA puts out a request for proposal for research to be funded by funds from rideATAXIA. This research grant is focused on translational research - research that will help bridge the gap between the laboratory and the clinic. Last year the rideATAXIA named award went to a team at the University of Minnesota who is analyzing the anatomical and functional connectivity of the central nervous system in FA using Magnetic Resonance Imaging (MRI). This work is critical to understanding when and which neurological pathways are compromised in FA and will be a building block for future therapies.  The Bob Allison Ataxia Research Center (BAARC) also contributed to the funding of this initial grant.

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Read more: Ride Ataxia funded research. MRI biomarker study at UMN
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