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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL rideATAXIA VIRTUAL

 

rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

rideATAXIA Chicago 2015

rideATAXIA Chicago took place in Channahon Central Park in Channahon, Illinois on July 19, 2015. July provides some tough weather (HOT!) for an outdoor physical event, but we had 370 riders and 20 teams. This was the fourth annual event and, in my opinion, has grown leaps and bounds! As of today, we raised over $72,000 and counting (I met my fundraising goal!). I am so honored to be a part of this event, it is so well organized and very empowering. rideATAXIA gives people with FA the opportunity to participate in an able-bodied ride in a safe and supportive event with people that understand the condition while educating everyone else! 

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Ataxian Athlete Initiative Announces 2015 Recipients

 

The Ataxian Athlete Initiative (AAI) provides adaptive cycling equipment to people with any type of ataxia who have demonstrated the desire to stay active and healthy despite their disabilities. This year, the AAI was sponsored by our partners at Catrike, The FA Project, The Texas Irish Foundation, and a contribution in memory of Gladys Lacativo.

FARA is pleased to announce the 2015 AAI grant recipients: Lee Bailey of Melbourne Australia, Marcos Alfonso Garcia Campo of Barcelona, Spain, Mandy Davis of Clinton, MO, Tiffany Gambill of Bridgewater, MA., Sean Mazeres of Woodland, CA, Kimberly Welch of Bridgeville, PA, and Billie Wells of Southfield, MI.

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2015 rideATAXIA NorCal

On May 17th, my friends from Sharon’s Lounge in Rancho Cordova, CA held a spaghetti fundraiser for my team (Team Megan) and rideATAXIA NorCal. My good friends Terry Barragan, Joe Gough, Sharon Juarez, and Karen Hannum all played proactive roles in planning. As friends piled in and we all enjoyed the spaghetti and other goodies donated by people, I looked around in awe by everyone that was there for me. I know that weekends are especially busy for people, and for them to still make it meant a lot. As the afternoon went on, my other good friends Cort and Margie Stratfull did their always entertaining karaoke and added a special twist to it. This included people donating to get other unsuspecting individuals to sing. It was hilarious! All in all the event raised $1,112 for my team. My favorite part of the day was just catching up with everyone and thanking them for coming. I now feel motivated to keep doing events like these.
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A Guide to Beginning Your Search For Adaptive Cycling Equipment

**Note: This article is focused on individuals affected by FA but aspects of this article may relate to many other conditions with symptoms that include compromised balance and coordination.**

It is likely that every person with Friedreich's ataxia (FA), Ataxia, or any neuromuscular disease with no current treatment or cure has heard it many times before "Exercise is the key to staying healthy and may even slow down the progression of the disease."

With obvious positive physical and mental effects, exercise is the main treatment that is available to us right now. However there are many factors such as accessibility, availability, and cost that limit exercise. Adaptive cycling is one of the most accessible forms of exercise because anyone can do it as long as they have the right equipment. For someone living with Friedreich's ataxia (FA) who would like to try adaptive cycling, the first question is:

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Ride Ataxia Philly Promo Videos

We are incredibly grateful to our Media Partner, PHL 17 for an outstanding job on three promo videos leading up to the Philly ride. Check them out. Thank you Jennifer Lewis-Hall and team!

 

 

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