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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

 

rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

2015 rideATAXIA NorCal

On May 17th, my friends from Sharon’s Lounge in Rancho Cordova, CA held a spaghetti fundraiser for my team (Team Megan) and rideATAXIA NorCal. My good friends Terry Barragan, Joe Gough, Sharon Juarez, and Karen Hannum all played proactive roles in planning. As friends piled in and we all enjoyed the spaghetti and other goodies donated by people, I looked around in awe by everyone that was there for me. I know that weekends are especially busy for people, and for them to still make it meant a lot. As the afternoon went on, my other good friends Cort and Margie Stratfull did their always entertaining karaoke and added a special twist to it. This included people donating to get other unsuspecting individuals to sing. It was hilarious! All in all the event raised $1,112 for my team. My favorite part of the day was just catching up with everyone and thanking them for coming. I now feel motivated to keep doing events like these.
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A Guide to Beginning Your Search For Adaptive Cycling Equipment

**Note: This article is focused on individuals affected by FA but aspects of this article may relate to many other conditions with symptoms that include compromised balance and coordination.**

It is likely that every person with Friedreich's ataxia (FA), Ataxia, or any neuromuscular disease with no current treatment or cure has heard it many times before "Exercise is the key to staying healthy and may even slow down the progression of the disease."

With obvious positive physical and mental effects, exercise is the main treatment that is available to us right now. However there are many factors such as accessibility, availability, and cost that limit exercise. Adaptive cycling is one of the most accessible forms of exercise because anyone can do it as long as they have the right equipment. For someone living with Friedreich's ataxia (FA) who would like to try adaptive cycling, the first question is:

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Read more: A Guide to Beginning Your Search For Adaptive Cycling Equipment

Ride Ataxia Philly Promo Videos

We are incredibly grateful to our Media Partner, PHL 17 for an outstanding job on three promo videos leading up to the Philly ride. Check them out. Thank you Jennifer Lewis-Hall and team!

 

 

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Ride Ataxia funded research. MRI biomarker study at UMN

Kyle PegBoardEach year FARA puts out a request for proposal for research to be funded by funds from rideATAXIA. This research grant is focused on translational research - research that will help bridge the gap between the laboratory and the clinic. Last year the rideATAXIA named award went to a team at the University of Minnesota who is analyzing the anatomical and functional connectivity of the central nervous system in FA using Magnetic Resonance Imaging (MRI). This work is critical to understanding when and which neurological pathways are compromised in FA and will be a building block for future therapies.  The Bob Allison Ataxia Research Center (BAARC) also contributed to the funding of this initial grant.

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Read more: Ride Ataxia funded research. MRI biomarker study at UMN

2014 Ataxian Athlete Initiative Recipients

The Friedreich’s Ataxia Research Alliance (FARA), in partnership with The FA Project, Catrike, The Melting Pot, and The Texas Irish Foundation is pleased to announce the 2014 Ataxian Athlete Initiative (AAI) grant recipients: Liam Dougherty of Philadelphia, PA, Carl Estabrook of Rockport, MA, Abby Yingling and Chase Yingling of Lemoyne, PA, Amanda Hernandez of Graham, TX, and Mary Fuchs of Sun Lakes, AZ.

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Read more: 2014 Ataxian Athlete Initiative Recipients
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