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rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

Announcing the 2013 Ataxian Athlete Initiative Grant Recipients

The Friedreich’s Ataxia Research Alliance (FARA), in partnership with The FA Project, Catrike, The Texas Irish Foundation, and UVA Sun Systems are pleased to announce the 2013 Ataxian Athlete Initiative (AAI) grant recipients. The AAI provides adaptive cycling equipment to people with Ataxia who have demonstrated the desire to stay active and healthy despite their disabilities. Friedreich’s ataxia (FA) is a rare, progressive and life-shortening neuromuscular disease for which there is currently no cure.

The AAI is managed by Ride Ataxia, a FARA program with a mission to promote active lifestyles among FA patients through cycling events across the United States geared towards raising awareness and much-needed research funds. The 2013 AAI was funded by The FA Project, Catrike, UVA Sun Systems, The Texas Irish Foundation, and a donation in memory of Gladys Lacativo.

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Ataxian Athlete Initiative Now Accepting Applications for 2013 Grant Program

For Immediate Release 

Rare Disease Organization to Provide Adaptive Cycling Equipment to Deserving Applicants 

Downingtown, Penn.,(April 8, 2013) – The Friedreich’s Ataxia Research Alliance (FARA),an organization dedicated to accelerating research leading to treatments and a cure for Friedreich’s ataxia (FA) has issued a “call for applications” for the 2013 Ataxian Athlete Initiative (AAI).

The AAI is a grant program that provides funding for equipment that enables eligible inpiduals with Ataxia to start or further develop their abilities in adaptive cycling. The AAI has empowered 14 inpiduals through adaptive cycling since 2009.
 

The AAI is managed by Ride Ataxia, a FARA program with a mission to promote active lifestyles among Ataxia patients through nationwide cycling events designed to raise awareness and much-needed research funds for FA. FA is a rare, progressive, life-shortening neuromuscular disease for which there is currently no cure.

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Rider Profile: Mark

Name: Mark Solow               

Hometown: Tulsa, OK

Current Location: Highland Village, TX

Age: 55 (will be 56 by the ride)

Occupation:  Sales.  (I sell network television time to ministries and humanitarian organizations.)

Club: Pathfinders Fun Cycling  (facebook.com/cyclehighlandvillage)

About you in your own words:  I’m an organizer.  Love putting (different) weekly rides together for all skill level riders.  I love dogs and usually pull at least one behind my (Trek FX 7.5) hybrid bike.  I love my carbon roadie too, but I can’t pull a trailer behind it.  I’ve got three (grown) kids.  My youngest is still in college and rides a fixie to class most days and pulls a pedicab behind his mountain bike on weekend to earn extra money.  He’s the one that got me into cycling when he came home from college with his new fixed gear bike and asked me to ride bikes with him.  The last time he asked me to ride bikes with him was when he was in elementary school!  My 40 year old 10-speed hadn’t been off the ceiling hooks for 10 years.  But, the Dawes Galaxy still worked.  Off we went, and I loved it so much, that I’ve ridden almost every day since (Aug. 2010).

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Announcing the 2012 AAI Recipients

We are very excited to announce the recipients of the 2012 Ataxian Athlete Initiative!

The AAI funds the purchase of adaptive cycling equipment for people with Ataxia so they can participate in Ride Ataxia and have cycling adventures of their own.

The AAI program has experienced steady growth in both funding and the number of applications received since its 2009 inception. Because of a strong partnership with The FA Project, Catrike, The Melting Pot, and UVA Sun Systems the AAI more than doubled its impact from the previous year, providing funding for adaptive cycling equipment to seven inpiduals throughout the country.

The 2012 AAI recipients are Crystal Millering of High Ridge, Mont., Hamid Mehrizi of Dublin, Ohio, Nicole Kramer of Villa Park, Ill., Tricia Herman-Maul of Yorkshire, N.Y., Justin Hernandez of Graham, Texas, Mary Dieteman of Douglassville, Penn. and Lauren Williams of Glen Burnie, Md.

Read and share the Press Release HERE.

 

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