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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

 

rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

Registration is open for Ride Ataxia Philadelphia 2011

The 3rd Annual Ride Ataxia Philadelphia will offer 5, 10, 25, and 50-mile route options starting and ending at Limerick Community Park in Limerick, PA on October 9, 2011. The ride will once again feature well marked courses and cue sheets, fully stocked rest stops, and strong SAG/mechanical support provided by Bike Sport, Tri County Bicycles, and Spinners Mobile Bike Repair. Additionally the ride includes what has been called "the best post-ride food ever!" with a delicious meal provided by our presenting sponsor Outback Steakhouse plus Carrabba's Italian Grill and Bonefish Grill. You will not leave hungry!

Last year Ride Ataxia Philadelphia welcomed 400 riders and raised $150,000 for Friedreich's ataxia (FA) research!

Please follow these simple instructions to guide you through the registration and fundraising process for Ride Ataxia Philadelphia.

 

1.  Register for the ride

  • Go to rideataxia.org/philly
  • Click the button at the upper left that says "Register to Ride". This will take you to the Ride Ataxia Philadelphia Active.com registration page
  • At the Active.com registration page, click on the green button to the upper right that says "Register Now"
  • Pick your preferred ride length (If you are registering as a team of 10 to receive the discounted rate, you must choose a team Captain to create the team.  After the team has been created each inpidual team member can register and find the team under the name created by the captain, max is 10 per team for registration), read and agree to the waivers, fill in your date of birth and click "Agree and Continue"
  • Fill out all your information and answer the questions.  Scroll down and click "continue"
  • Fill in your payment information and click "Pay Now".  Note:  Your registration fee goes to FARA; the "Processing Fee" goes to active.com. 

 

2.  Now that you have registered to ride, you need to create your personal fundraising page...There are two ways to do this. 

     a.  After you register to ride (step 1 above) you will receive two confirmation emails, one is a receipt for your payment and one has instructions on how to set up your fundraising page.  Follow the instructions in the email.

  b.  Follow the instructions below:

Go to rideataxia.org/philly

  • Click the button at the upper left that says "Donate Now".  This will take you to the event fundraising site.
  • Click on the link in the uper left that says "register"
  • If you were a participant last year, choose "I already have an account", enter your email and password and then click next (please skip the next bullet).  If this is your first Ride Ataxia event choose "I need to create an account" (this is completely separate from the active.com registration in step #1) then click "next"
  • Fill in your information and click "next"
  • Set your fundraising goal, AIM HIGH! Enter your display name and click "next"
  • If you would like to create a team choose "Create a team".  If your friends have already created a team that you want to join. click "search for an existing team". Note:  Everyone on a team will all have an inpidual fundraising page with an inpidual total and those inpidual totals will be combined for the team total on the team page.  All team and inpidual totals will be combined on the event page. Note: there is no limit to the number of people you can have on a fundraising team.  If you registered 2 teams of 10 in step 1 above they can all be on the same team for fundraising. If you do not want to join a team choose "Do not join a team".  Click "next".
  • confirm your info and click "next".
  • you will receive a confirmation email which will take you to your page where you can upload a picture and write a personal message to your potential donors.  Here is an example: https://sna.etapestry.com/fundraiser/FriedreichsAtaxiaResearchA/raphiladelphia/inpidual.do?participationRef=968.0.418554997
  • copy the link for your page, paste it in an email or on facebook, twitter...tell everyone about your efforts to help cure FA!

 

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Read more: Registration is open for Ride Ataxia Philadelphia 2011

Multiply Your Vote with Power Votes

From the previous post you know that The Ataxian documentary is in the running for a $50k grant from the Pepsi Refresh Project (refresheverything.com/theataxian).

The film needs this money because the footage will need sound and color work which will need to be contracted out. The cost will be roughly $50k. The voting will be open for a few more weeks and the top 10 ideas with the most votes will be awarded $50k.

Voting has been open since June 1 and your efforts to date have earned us a ranking of 21 out of hundreds of ideas.  This is pretty awesome, thank you.

As a reminder there are three ways to vote and you can do one or all three.
 

  1. Send a text daily to the number "73774" and write "106922" in the body of the message.
  2. Cast a vote daily either through your Facebook login or directly through Pepsi refresheverything.com/theataxian
  3. Buy Pepsi products that have the Pepsi Refesh Power Vote, Enter the code at refresheverything.com/theataxian to cast your Power vote.

I want to address #3 on this list because I think it is the key to success. With power votes, you enter the little code on the inside of the yellow cap and you can get 5, 10, 15, 25, 50 or 100 votes per code. But here's the kicker: you can power vote up to 10 times per day. So yesterday I did a little experiment. I went to the store and bought 10 Pepsi's (2 20 oz. and 8 2 liters) and I power voted 10 times. In the end I got a total of 165 votes. We are currently 21st and we need to get into the top 10. I am confident that power votes are needed to get there. I am not suggesting that we do not need the single votes because we need it all and I am not suggesting that you go out and buy 10 Pepsi's each every day, I just wanted to bring attention to power votes and how they might benefit our effort. Even with one power vote per day you will at the very least have 5 votes per day instead of one.

For those who do not have any idea what a power vote is here is a little tutorial with help from refresheverything.com:

Look for power vote codes on specially-marked Pepsi products. Look for bottles with yellow caps or any Pepsi product that says "Power Votes" on it (limited to Pepsi, Diet Pepsi, and Pepsi Max). The Code will be under the bottle cap or printed on the inside of your multi-pack. For example:


Click Image For Larger View

After you have located your Power Vote Code visit refresheverything.com/theataxian:



Above the big button that says VOTE FOR THIS IDEA is a link with the text "Power Vote For This Idea", click that link:



You will be taken to a page that looks like the one below.  Click on the Button That says "Sign In."


 

You will be given the choice to sign in with Facebook or through Pepsi.  However you must login with Pepsi to enable power voting.  So if you have a Pepsi login choose "Sign in with Pepsi."  If you don't already have a Pepsi login choose "Sign up", you only have to give them your first name, last name, email and birth date to create an account.


Sign up screen:


The "Prove you're not a robot" code is a little tricky sometimes but keep trying, you'll get it.


 

 

After you are logged in you will find a screen that will allow you to enter your power vote code:


 

Enter your code and click "Activate." Pepsi will work it's magic as it determines the value of your code.  This one was worth 15 votes:


 

Now click link that says "return to your last idea."  It may take you to The Ataxian idea page (this is where you want to be) or it may take you to "secure.refresheverything.com/index" if it does this just replace the word "index" with "theataxian" so you end up at "secure.refresheverything.com/theataxian" which should look like this:


Click on the big yellow button that says "Power Vote" aaand your power votes will be applied to The Ataxian!  You just multiplied your vote by at least 5!

If you have more than one code you are not done!  Simply click on the link to the lower right that says "Activate Power Voting" which will bring you back to the screen where you can enter another code!



The Pepsi site is a little finicky sometimes and it may log you out from time to time as you are going through the power voting process but just log back and keep plugging away.  The time you spend on this is appreciated by thousands of people all around the world.  Thank you for your time and effort.

Use up to 10 codes a day to help us get closer to the completion of this film and closer to a cure for FA!

 

 

 

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Read more: Multiply Your Vote with Power Votes

Vote for The Ataxian documentary in The Pepsi Refresh Project

The Ataxian documentary which chronicles Team FARA’s 2010 Race Across America journey is in the running for a $50,000 Pepsi Refresh grant but THEY NEED YOUR HELP. The Pepsi Refresh Project will award 10 grants to the Arts & Music $50,000 applicants receiving the most votes in the month of June. If they win, The Ataxian filmmakers will use the funds to help cover their post production costs.

You can vote for The Ataxian starting today.

You can either vote online from the above link and/or text your vote daily (Text 106922 to 73774). Voting continues through the whole month of June, and we need everyone to vote everyday. If you are a Pepsi drinker, you can also increase the power of your vote by entering the Power Vote code on select Pepsi products.

Please share this information with family and friends. We believe this film not only has great potential to raise awareness for FA but is also a universal story on the strength of the human spirit. Here is the link that you can send to family and friends: http://refresheverything.com/theataxian.

View the trailers for the film here:

 

 

 

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Read more: Vote for The Ataxian documentary in The Pepsi Refresh Project

Discounts for NorCal riders!

Attention NorCal riders!  Looking for equipment deals in preparation for the ride on May 14?  For the entire week leading up to the ride, Ken's Bike and Ski will be offering our riders 15% off their lowest posted price on any cycling accessories, and 5% off their lowest posted price on any bike.

Check them out any time that week or we'll see you there for packet pickup May 13 from 4pm - 530pm!

To find out more about Ride Ataxia NorCal or to sign up or donate please visit the Ride Ataxia NorCal event website.

 

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Read more: Discounts for NorCal riders!

Jerseys To Honor Phillip

Our jersey designer, Larry Phillips (Superlario) read the previous blog post just as the NorCal jerseys were being finished with printing.  He called me and told me that he was going to send the fabric for the collars back through the printer before they were assembled so they could print a memorial to Phillip on the inside Collar of each 2011 NorCal jersey.  I can't wait to get mine!

Here is the final design with the Phillip Bennett Memorial which will appear on the inside collar of the jersey.

Thank you to our Jersey Sponsors: Brown and Caldwell and Edison Pharmaceuticals.

Each participant who fundraises $500 or more will receive a jersey either in your goodie bag (available the day before the ride) or to be shipped after the ride (for those fundraisers who may not have met the jersey deadline).

To find out more about the ride in Davis, CA please visit the Ride Ataxia NorCal Website.

 

 

 

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Read more: Jerseys To Honor Phillip
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