On October 1st, 2013, I was diagnosed with FA; my family and I knew nothing about what it meant. This year will be the 5th year anniversary of my diagnosis, and I've been reflecting on how much I've learned.
I'm going to share specifically about my rideATAXIA experience. A year went by after being diagnosed, before my family and I went to see Dr. Lynch and his team at Children's Hospital of Philadelphia (CHOP). During our meeting with him, he told us about 2 major events in Philadelphia: The CHOP FA Symposium and rideATAXIA and their stories. He mentioned that we were too late for registration for that year and should try and plan to go next fall!Add a comment