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FARAFARA Cure FA

A longitudinal study of the Friedreich Ataxia Impact Scale

Quality of life in Friedreich ataxia (FRDA) has been explored using various generic health status measurement tools, most commonly the Short Form Health Survey Version 2 (SF-36v2). The tool did not address many specific issues related to disease impact in people with FRDA. The Friedreich Ataxia Impact Scale (FAIS) was developed to examine clinically relevant areas in FRDA. The aims of the current study were to assess the relationship between the FAIS and clinical characteristics of FRDA, as well as to determine the responsiveness of the FAIS to change over one and two years.

Read More: A longitudinal study of the Friedreich Ataxia Impact Scale


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Jen Farmer

Jen Farmer

Executive Director

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