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FARAFARA Cure FA

Exploration of transitional life events in individuals with Friedreich ataxia: Implications for genetic counseling

Human development is a process of change, adaptation and growth. Throughout this process, transitional events mark important points in time when one's life course is significantly altered. This study captures transitional life events brought about or altered by Friedreich ataxia, a progressive chronic illness leading to disability, and the impact of these events on an affected individual's life course.

Exploration of transitional life events in individuals with Friedreich ataxia: Implications for genetic counseling


About the Author

Jen Farmer

Jen Farmer

Executive Director

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