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FARAFARA Cure FA

Common data elements for clinical research in Friedreich's ataxia

To reduce study start-up time, increase data sharing, and assist investigators conducting clinical studies, the National Institute of Neurological Disorders and Stroke embarked on an initiative to create common data elements for neuroscience clinical research. The Common Data Element Team developed general common data elements, which are commonly collected in clinical studies regardless of therapeutic area, such as demographics.

Read More: Common data elements for clinical research in Friedreich's ataxia


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Jen Farmer

Jen Farmer

Executive Director

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