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FARAFARA Cure FA

Team FARA Blog

Team FARA members are running, walking, biking and swimming for FA research around the world.

While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.

Tobacco Road Marathon

TobaccoRoad

Running for Alison:

The Tobacco Road Marathon was on Sunday March 19th and it was a great day to run. The weather was cool and the event was rocking! The spectators were energizing and the course was just as I had hoped…not hilly! I had run a marathon before but it had been almost 6 years and I really had not run much since. Life had gotten crazy for me and running was a good outlet but I really never had much time to put in any real mileage. I saw this race as a great opportunity to create awareness and raise some money for a great cause, FARA. My friend Matt Price’s daughter, Alison, had been diagnosed with Friedreich’s Ataxia only a few years before. I had the pleasure of living next to the Price family when we moved into our home. We had the pleasure of watching our kids grow up together for a time and since Alison’s diagnosis I have wanted to get involved in some way. This was a perfect opportunity for me to join Team FARA and raise awareness. Running with this purpose motivated me even on the days running did not seem so fun. It was a great event and I enjoyed talking with folks about Alison, our cause and raising a little money too!!!

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A Mini Marathon Full of Heart

TeamFARA miniheartmarathonBeginning at Fountain Square in downtown Cincinnati, runners of the Cincinnati Heart Mini Half Marathon & Walk made their way along the Columbia Parkway, up and down hills, before heading back to the starting point after getting a glimpse of the Ohio and Kentucky border.

This is how Tammy Rasey and her co-worker spent their Sunday, on March 12, 2017, running the events 15k.This marathon is Greater Cincinnati's largest fundraising event and marked the 40th year of honoring stroke and heart-related survivors. 

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Team FARA in NYC -TCS New York City Marathon

2016 TCS NEW YORK CITY MARATHON—TEAM FARA

TeamFARANYC1On Sunday, November 6, 2016, five members representing TEAM FARA ran the New York City Marathon to raise money for the Friedreich’s Ataxia Research Alliance. Team members included Felicia DeRosa, Jamie Young, Lucy Braid, Dr. Sathiji Nageshwaran and myself, Tom Batta. All of us share a connection to the FAmily and my connection is my 13 year old daughter, Ryanne, who was diagnosed with FA at age 8. In the last five years since the confirmation of FA, our family has learned to slow down and take one day at a time. We make every effort to remain present in the moment. We know the challenges of FA that lie ahead, but we are taking a “that is then” and “this is now” approach to life. Last March Jaime reached out to me and asked if I wanted to run for FARA, and I jumped at the opportunity! We feel very blessed by our family and friends who supported our efforts and together, TEAMFARA NYC 2016 raised $39,434!  Add a comment

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Team FARA Ottawa and Lake Placid Marathon Challenge

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On Friday, May 27, I embarked on a running journey that would span over 1,000 miles in a 17 day period. I had run for Team FARA before, but this time I wanted to do something a little extra special. After a lot of thinking, I came up with the idea of the Ottawa Marathon and Lake Placid Marathon Challenge. These two races would be separated by a mere fifteen days and would certainly test my running mettle. The motivation and inspiration for this endeavor was an amazing girl named Cecelia Egan. Cece, as her friends call her, is one of my daughter's closest friends in her 7th grade class and one of the kindest and bravest individuals I have ever met. I was truly honored to run in Cecelia's name and I was so incredibly grateful to have the opportunity to run for her. Add a comment

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