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FARAFARA Cure FA

DC Color Run for FA Awareness

On May 17th, Washington DC gathered thousands for its annual Color Run. Named “the happiest 5K on the planet”, the 3.1 miles along the National Harbor Waterfront came alive with runners and walkers drenched in bright colors, supporting fundraising organizations and spreading contagious smiles to everyone involved. 
 
Kristie Schanamann, one of the many great cousins of this author, ran the race with 7 friends in support of FA. Kim B., Kim S., Rachel, Molly, Sonia, Amy, and Kaitlin were not familiar with FA beforehand, but learned about the symptoms surrounding FA and the struggles those afflicted face every day. After learning about the support of FARA and the amazing research being conducted to find a cure, they dedicated their run to the FA community. With custom-made shirts sharing facts about FA, they jetted past the pack and made sure everyone behind them learned about our disease. They left the waterfront with pride – not only completing the race but being able to promote FA awareness through their participation and positive attitude. Thank you girls for being advocates and representing the FA community at an exciting event!
 
When asked about their experience, the girls were glad to share facts about FA with fellow racers. They were humbled to see those with muscular and neurological disorders completing the 5K. With the help of friends and/or walk aids, disabled racers shared in the fun and got their fair share of kaleidoscope coloring along the way! With positive attitudes and selfless support, we can all spread awareness, and with persistence and determination, anyone can make a difference. We WILL cure FA, TOGETHER (and of course have a little fun while doing it!)
 
Kristie is a dedicated runner and an avid fundraiser for great organizations. Given our family’s recent exposure to FA, she is dedicating her fundraising efforts and runs to FARA and the FA community! I am blessed to have such a supportive and loving person in my family; using her talents to empower the FA community. You can visit her fundraising page and show your support at: http://fara.kintera.org/teamfara2015/kschanamann
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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