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FARAFARA Cure FA

Pennsylvania Spartan Super

2016SpartanSuper1

On July 16, friends and family of Anna Morrow took to Blue Mountain Ski Area, participating in the Pennsylvania Spartan Super. The race consists of a 9 mile run – up and down the mountain and 31 obstacles – including log carries, swimming and rope climbing, to name a few. 

2016SpartanSuper2Anna, daughter of Ben and Kristin, is 10 years-old and was diagnosed with FA last year. In Anna's honor, family friend, Pat Hoiler, led Team FARA's participation in the event. 

“A favorite moment was when we completed the race after pushing ourselves to the finish after a long day on the course. It was rewarding to complete it, especially with the feeling that lots of friends, family and strangers had contributed to the fundraising effort centered around this race. It made me really appreciate the time and effort that Pat had put into this cause for our daughter, Anna,” says Ben.

MandyDavissignatureMandyDavis


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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