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FARAFARA Cure FA

See Jane Run

“It was hard and I’m still sore but I did it!,” says Zoe Penston. 
 
On June 21, 2015, Team FARA was represented at “See Jane Run” in Alameda, CA. “See Jane Run” is a 5k and half marathon that is held annually and gives runners spectacular views of downtown San Francisco and the San Francisco Bay. Although this is an annual event, this was the first time Team FARA participated. 
 
Zoe rallied friends to run for her two children, Izzy and Owen, who have Friedreich's Ataxia. Together, the team of 25 raised $11,136 for FARA.
 
Reflecting on the day, Zoe says, “The best thing from the day for me was crossing the finish line and having friends and family there cheering me on. It fills me with so much hope, just knowing that we have so many people surrounding us with love.”
 
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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