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FARAFARA Cure FA

Tobacco Road Marathon

TobaccoRoad

Running for Alison:

The Tobacco Road Marathon was on Sunday March 19th and it was a great day to run. The weather was cool and the event was rocking! The spectators were energizing and the course was just as I had hoped…not hilly! I had run a marathon before but it had been almost 6 years and I really had not run much since. Life had gotten crazy for me and running was a good outlet but I really never had much time to put in any real mileage. I saw this race as a great opportunity to create awareness and raise some money for a great cause, FARA. My friend Matt Price’s daughter, Alison, had been diagnosed with Friedreich’s Ataxia only a few years before. I had the pleasure of living next to the Price family when we moved into our home. We had the pleasure of watching our kids grow up together for a time and since Alison’s diagnosis I have wanted to get involved in some way. This was a perfect opportunity for me to join Team FARA and raise awareness. Running with this purpose motivated me even on the days running did not seem so fun. It was a great event and I enjoyed talking with folks about Alison, our cause and raising a little money too!!!

jeremystinsoncommunitysigna


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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