Grant Program
Types of Grants
General Research Grants
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Bronya J. Keats Award for International Collaboration in Research on FA
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Keith Michael Andrus Memorial Award
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Phillip Bennett and Kyle Bryant Translational Research Award
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Requests for Proposals
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Scientific Meeting Grants
Specific guidelines for each grant type
General Research Grant
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FARA accepts LOIs from qualified investigators for projects that target FARA’s research priorities twice per year (due February 1 and July 15).
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For those invited to submit a full application, the deadlines for submission are April 1 and September 15, respectively.
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On the Main Grant Page, put “General Research” in the “Grant Type” field.
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The applicant may request a budget of up to $150,000 per year for one or two years.
General Research Grant Subtype:
Postdoctoral Trainees and Ph.D. Students
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Salaries for all those contributing to the research project (PI, postdocs, graduate students, research associates, etc.) can be requested
under personnel costs in the budget of a General Research Grant application.
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Additionally, FARA has an application subtype specifically for PIs requesting only salary (plus applicable benefits) to support postdoctoral
trainees and Ph.D. students in their laboratory. It is strongly encouraged that the trainee/student prepare the research plan to be submitted
with the application. The name and CV of the postdoctoral trainee or Ph.D. student must be included in the application.
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The guidelines for General Research Grants should be followed, but the only allowable budget item is salary for the postdoctoral
trainee or Ph.D. student (plus applicable benefits and tuition support) and the requested amount must not exceed the appropriate NIH stipend level.
Bronya J. Keats Award for International Collaboration in Research on FA
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FARA accepts LOIs focusing on FA research that relies on international collaboration among investigators in at least two different countries.
Special consideration will be given to proposals that bring new scientists to the FA community.
The rationale for the collaboration needs to be convincing and must clearly demonstrate that the research goals could not be
achieved by just one of the participating groups and that the synergy among the groups is essential for the success of the project.
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The deadline for the LOI is May 15. For those invited to submit a full application, the deadline for submission is July 15.
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On the Main Grant Page, put “Keats Award” in the “Grant Type” field.
The applicants may request a combined budget of up to $200,000 per year for one or two years.
Phillip Bennett and Kyle Bryant Translational Research Award
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FARA accepts LOIs focusing on pre-clinical and clinical investigations that will advance treatments for FA.
The specific aims must target one or more of the following:
- Identification of biomarkers for FA that will elucidate disease variability, severity, and prognosis; facilitate drug screening, and/or optimize selection of patients and clinical endpoints for clinical trials;
- Development of tools and technologies that can (a) be directly used for therapy development; (b) overcome existing obstacles to treatment and (c) be directly applied to, or adapted for, delivery of potential therapeutics;
- Pre-clinical development and testing of potential therapeutics, biologics, and devices in cells and animals;
- Clinical studies of patient outcome measures, potential interventions, or devices.
The deadline for the LOI is May 15. For those invited to submit a full application, the deadline for submission is July 15. On the Main Grant Page, put “PB and KB Translational Award” in the “Grant Type” field. The applicant may request a budget of up to $250,000 per year for one or two years.
Kyle Bryant and Ride Ataxia
Kyle Bryant is a young man with FA who has incredible determination, spirit and vision. In 2007, Kyle embarked on an amazing journey and fundraising and awareness initiative – Ride Ataxia. He and his Dad biked from San Diego, California to Memphis, TN. The money Kyle raised was matched by FARA and NAF and both organizations announced the first Kyle Bryant Translational Research Award. In 2008 with a trip from Sacramento, California to Las Vegas, Nevada and in 2009 with a trip from Portland, Oregon to Seattle, WA, Kyle’s success has only grown - in participants, in opportunities to raise awareness and in critical funds raised for research. For more information on Kyle Bryant and Ride Ataxia go to RideAtaxia.org
Phillip Bennett
The 2012 Ride Ataxia Nor Cal event was dedicated to the memory of a leader in the community, Phillip Bennett. Phillip was the force behind Sunset On Friedreich's Ataxia (SOFA), one of the first large scale fundraising events benefitting FA research. This community dinner/dance/auction raised a total of $200k and led the way for many other fundraisers to follow. Phillip was not afraid of FA or the future, he lived moment by moment, squeezing every drop from life. Phillip's close friend Jamie Richards writes at his passing in March "Too many of us wait. And wait, and wait. Someday, we tell ourselves, we'll say it, start it, try it, do it or complete it. Phillip didn't wait. He swam and skied. He rode roller coasters. He rappelled and river rafted. He even went spelunking. He made friends. He laughed. He partied. He crammed 72 years of life into 27." This year the proceeds from the NorCal ride will be combined with Phillip's memorial fund, and this money will be used to fund the 2012 Phillip Bennett Translational Research Award.
Previous Phillip Bennett and Kyle Bryant Award Recipients
2011 Kyle Bryant Translational Research Award recipient:
- Dr. Joseph Sarsero
Correction of Friedreich ataxia iPS cells by non-viral gene therapy
2011 Phillip Bennett Translational Research Award recipient:
- Dr. Gino Cortopassi - Repurposing existing approved drugs for Friedreich's ataxia therapy
2010 Kyle Bryant Translational Research Award recipients:
- Dr. Martin Delatycki - An Open Label Proof of Principle Study of Resveratrol as a Treatment for Friedreich Ataxia
- Dr. Devin Oglesbee - High-Throughput Meso-Scale Discovery of Frataxin Enhancers
2009 Kyle Bryant Translational Research Award recipients:
- Dr. Mark Payne - Optimizing delivery of frataxin using cell penetrant peptides
- Dr. Gino Cortopassi - Screening for mitofunctional Friedreich’s Ataxia therapeutics
- Dr. Marek Napierala - Crosstalk between microRNAs and iron metabolism in the pathogenesis of Friedreich’s ataxia
2008 Kyle Bryant Translational Research Award recipients:
- Dr. James Rusche - Repligen Corporation, Project Title: Development of Methods to Determine the Pharmacodynamic Effect of HDAC Inhibitors on Frataxin Expression
- Drs. Subha V. Raman and Roula al-Dahhak - Ohio State University, Project Title: Preclinical Markers of Cardiomyopathy in Friedreich's ataxia
2007 Kyle Bryant Translational Research Award recipient:
Keith Michael Andrus Memorial Award
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FARA accepts LOIs focusing on advancing understanding and/or treatment of the cardiac involvement in FA.
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The deadline for the LOI is January 15. For those invited to submit a full application, the deadline for submission is March 1.
On the Main Grant Page, put "KMA Award" in the "Grant Type" field.
The applicant may request a budget of up to $150,000 per year for one or two years.
Keith Michael Andrus
Keith was the inspiration for the formation of FARA. Keith’s diagnosis of Friedreich’s ataxia at the age of 11 led his step-father and mother, Ron and Raychel Bartek, to establish FARA. Keith’s battle with FA ended, January 22, 2010, at the age of 24 due to congestive heart failure. Even during the final and very challenging months of Keith's life he courageously continued to advocate not only for himself but for others with FA as he left no stone unturned exploring advanced and experimental treatment options.
As a tribute to Keith’s legacy and to help improve the lives of others diagnosed with FA, the Keith Michael Andrus Memorial Award has been established. This award is specifically designated for cardiac research.
Previous Keith Michael Andrus Cardiac Research Award Recipients
2011 Keith Michael Andrus Cardiac Research Award recipient:
- Dr. Francisco Sacca - A double-blind, randomized, placebo-controlled, clinical trial to test the efficacy of Epoetin alfa on physical performance of FA patients
2010 Keith Michael Andrus Cardiac Research Award reciepient:
- Dr. Arnulf Koeppen - The cardiomyopathy of FA
Requests for Proposals
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FARA will issue RFPs on an ad-hoc basis. These RFPs will be targeted to areas of special interest or to solicit proposals to address a question,
issue or resource that has priority. All RFPs will be announced through this website and through our e-bulletin list.
If you are not a subscriber please sign-up by selecting “Join Mailing List” at the top of this page and follow the prompts.
Scientific Meeting Grants
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FARA fosters collaboration and supports the research community through sponsorship and organization of scientific workshops or meetings.
We feel strongly that sharing insights, ideas, and expertise is essential for accelerating progress towards treatments for FA and for helping
scientists advance their work effectively. Workshops that bring together FA researchers and researchers in related disease and specialty
areas will generate new hypotheses, discoveries and collaborations. These workshops are of two types:
- International Scientific Conferences that provide the opportunity for the full scientific community involved in all aspects of research related to FA to come together to share findings and insights. The conferences are usually a minimum of three days in length. When necessary, FARA will seek financial support from other organizations to help support the conferences. FARA is also willing to receive requests for grant support from other organizations hosting similar workshops.
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Focused Workshops for small groups of scientists that enable in-depth discussions of specific research topics and facilitate
ongoing communication and cooperation among the participants. Such workshops should optimize collaboration and minimize costs,
and must align with FARA’s scientific priorities and mission.

Summaries of scientific meetings that have been hosted by FARA are available at:
http://www.curefa.org/conference.html
ORGANIZATIONS


