|
|
FARA Video
|
|
|
|
Introduction to Friedreich's Ataxia and FARA
|
|
|
|
FARA In Game Presentation at the Tampa Bay Lighting Game - Feb 1, 2013
|
|
|
|
2012 Energy Ball Video
Video introducing some of the families living with FA
|
|
|
|
The 2011 FARA Energy Ball took place on August 27,
2011 welcoming 800 guests.
This video played during dinner to give guests an inside view of a family perspective and a brief overview
of the exciting recent advancements in FA research
|
|
|
|
Video about FA shown at 2009 FARA Energy Ball
|
|
|
|
The cast of Army Wives
lends their support in raising funds for Friedreich's ataxia research
|
|
|
|
Ronde Barber and Kyle Bryant talk about Friedreich's Ataxia
|
|
|
|
John Isner & Kyle Bryant Discuss the Value of Determination & Perseverance
|
|
|
|
James & Thomas Blake - Overcoming Adversity
James & Thomas Blake Lend Their Support to FARA and People Living with FA
|
|
|
|
James Blake & Kyle Bryant - Confidence in FA Research
|
|
|
Pharmaceutical Professionals and Research Videos
|
|
|
|
Billy
Tauzin, President and CEO of PhRMA Address at the PhRMA Meeting on March 18, 2010
FARA is proud to share the video of the address of Billy Tauzin, President and CEO of the Pharmaceutical Research and
Manufacturers of America (PhRMA), at the PhRMA meeting on March 18th, 2010, The presentation includes a beautiful and
moving tribute to Keith Andrus and his legacy that continues to drive us forward. Mr. Tauzin is a champion for FA,
Keith Andrus and all individuals with rare diseases as he challenges his colleagues in the pharmaceutical industry
to make therapeutics for rare disease a high priority.
|
|
|
|
University of Melbourne - FARA supported FA Stem Cell research
|
|
|
|
Dr. Subha Raman discusses cardiac issues and FA
|
|
|
|
FA Mouse Model
Webinar recorded Feb 8, 2013
|
|
|
|
RepliGen/FARA
Webinar recorded July 26, 2011
|
|
|
2011 International Friedreich’s ataxia Scientific Conference - Interview Series
|
|
|
|
Dr. Marcia Haigis, Harvard Medical School.
|
|
|
|
FARA funded researcher Michele Lufino talks about his work
|
|
|
|
FARA funded researcher Mirella Dotorri talks about her work with Stem Cells
|
|
|
Energy Ball - FARA\USF Scientific Symposium Videos
|
|
|
|
FARA \ USF Scientific Symposium - 2012 FARA Energy Ball
Understanding A Cure - recorded Sep 6th, 2012
|
|
|
|
FARA \ USF Scientific Symposium - 2010 FARA Energy Ball
Cultivating A Cure
|
|
|
Friedreich's Ataxia Symposium Videos - Children's Hospital of Philadelphia
|
|
|
|
Fifth
Annual Friedreich's Ataxia Symposium - October 8, 2012
|
|
|
|
Fourth Annual Friedreich's Ataxia Symposium - October 8, 2011
|
|
|
|
Third Annual
Friedreich's Ataxia Symposium - November 13, 2010
|
|
|
|
Second Annual Friedreich's Ataxia Symposium - November 14, 2009
|
|
|
Ride Ataxia Videos
|
|
|
|
The History of Ride Ataxia
|
|
|
|
The Ataxian - Part 1
A documentary about Kyle Bryant and Ride Ataxia
|
|
|
|
The Ataxian - Part 2
A documentary about Kyle Bryant and Ride Ataxia
|
|
|
|
Ride Ataxia Kicked off the 2010 ride series in Tampa
and spoke on NBC Daytime about Ride Ataxia and FARA
|
|
|
|
FARA Ambassador - Kyle Bryant on NBC Daytime
|
|
|
|
Ride
Ataxia III
|
|
|
|
Ride Ataxia III - Interview with KVIE's Rob Stewart
|
|
|
|
Ride Ataxia II - News 10
|
|
|
|
Ride Ataxia I - The Original Ride Ataxia Promotional Video
|
|
|
Other Videos
|
|
|
|
Project Wheels
- My Battle with Friedreich's Ataxia: The Patrick Cogan Story
|
|
|
|
Sam's Story
- Sam Bridgman and Sean Baumstark talk about Friedreich's Ataxia, and de·ter·min·ence
|
|
|
|
Impossible is nothing
- The story of Sam Bridgman, a student at the University of Portland living with Friedreich's Ataxia
|
|
|
|
Race for Christina 5K
- 210 Runners arrive in Newtown, PA to support Christina and FARA
May 12th, 2013
|
|
|
|
"Demystifying Medicine"
- featuring Drs. Tracy Rouault and Kenneth Fischbeck along with Tom Trovinger, FA Patient and Jen Farmer, FARA Executive Director
|
|
|
|
Hearing Webinar -
Recorded Mar 27, 2012 - (1 hour audio recording)
|
|
|
|
Donovan's ski report 2010
|
|
|
|
How to turn a cookie into Hope - Izzy Penston's video of her 2011 Bake Sale.
|
|
|
|
Friedreich's Ataxia; Brooke's journey from majority to minority
|
