FARA
Patient & Family Resources

Video Resources

FARA Video

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Introduction to Friedreich's Ataxia and FARA
Play Video The 2011 FARA Energy Ball  took place on August 27, 2011 welcoming 800 guests.
This video played during dinner to give guests an inside view of a family perspective and a brief overview of the exciting recent advancements in FA research.
Play Video Video about FA shown at 2009 FARA Energy Ball
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The cast of Army Wives lends their support in raising funds for Friedreich's ataxia research
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Ronde Barber and Kyle Bryant talk about Friedreich's Ataxia
Pharmaceutical Professionals and Research Videos

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Billy Tauzin, President and CEO of PhRMA Address at the PhRMA Meeting on March 18, 2010
FARA is proud to share the video of the address of Billy Tauzin, President and CEO of the Pharmaceutical Research and Manufacturers of America (PhRMA), at the PhRMA meeting on March 18th, 2010, The presentation includes a beautiful and moving tribute to Keith Andrus and his legacy that continues to drive us forward. Mr. Tauzin is a champion for FA, Keith Andrus and all individuals with rare diseases as he challenges his colleagues in the pharmaceutical industry to make therapeutics for rare disease a high priority.
Play Video University of Melbourne - FARA supported FA Stem Cell research
Play Video Dr. Subha Raman discusses cardiac issues and FA
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RepliGen/FARA Webinar recorded July 26, 2011
2011 International Friedreich’s ataxia Scientific Conference - Interview Series

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Dr. Marcia Haigis, Harvard Medical School.
Play Video FARA funded researcher Michele Lufino talks about his work
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FARA funded researcher Mirella Dotorri talks about her work with Stem Cells
Cultivating a Cure - Scientific Symposium

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Video of the USF Scientific Symposium held at the 2010 FARA Energy Ball
Friedreich's Ataxia Symposium Videos - Children's Hospital of Philadelphia

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Fourth Annual Friedreich's Ataxia Symposium - October 8, 2011
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Third Annual Friedreich's Ataxia Symposium - November 13, 2010

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Second Annual Friedreich's Ataxia Symposium - November 14, 2009
Ride Ataxia Videos

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The History of Ride Ataxia
Play Video Ride Ataxia Kicked off the 2010 ride series in Tampa
and spoke on NBC Daytime about Ride Ataxia and FARA
Play Video FARA Ambassador - Kyle Bryant on NBC Daytime
Play Video Ride Ataxia III
Play Video Ride Ataxia III - Interview with KVIE's Rob Stewart
Play Video Ride Ataxia II - News 10
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Ride Ataxia I - The Original Ride Ataxia Promotional Video
Other Videos

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"Demystifying Medicine" - featuring Drs. Tracy Rouault and Kenneth Fischbeck along with Tom Trovinger, FA Patient and Jen Farmer, FARA Executive Director
Play Video Donovan's ski report 2010
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How to turn a cookie into Hope  -  Izzy Penston's video of her 2011 Bake Sale.