Powering research to treat Friedreich’s Ataxia
Dear FA family,
Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.
Leading to the discovery and advancement of treatments for FA
Join a passionate community and change the course of this rare disease
Apply for a research grant and make an impact
Work with an experienced research community
Utilize FARA resources to help optimize the pace of research
Latest news from our community.
Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich's Ataxia
Industry NewsStealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia
FARA News, Industry News, ResearchMeet the 2024 FARA Fellows
FARA News, Research
FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube
Education
FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI)
rideATAXIA
United Against Ataxia Hill Day 2024 – Registration open!
Advocacy, FARA NewsAugust 2024 - Advocacy Newsletter
Advocacy
Join us for FA Community Conversations – Genetic Medicine on August 29, 2024
EducationLarimar Therapeutics Reports Several Updates on Nomlabofusp FA Program in Q2 2024 Operating and Financial Results
Industry NewsJob Opening – Accounting Specialist
FARA News
FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable
Advocacy, FARA News
2023 Donor Impact Report
FARA News
Our upcoming events.
Race for Matt & Grace
Join the families of FA patients Matt DiIorio, Grace Hopkins, and Alex Fielding at Rhode Island College in Providence for the Annual Race for Matt & Grace. This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.
Grassroots
rideATAXIA Hometown Ann Arbor
rideATAXIA
An Informational Webinar hosted by Lexeo Therapeutics
Lexeo Therapeutics will be hosting this webinar to share information and preliminary data from their phase 1/2 trial of LX2006, a gene therapy that targets the heart.
Education
6th United Against Ataxia Hill Day
Advocacy
Living with Purpose - An Evening to Cure FA
Help us Celebrate Life with Purpose. Hors D'oeuvres, Dinner, Dessert, Cash Bar, Raffle, Silent Auction, Complimentary holistic practicioners.
Drive-In Movie Fundraiser for FARA
Join us for a great cause and a fun night at the drive-in! Admission includes movie screening, popcorn, and soda.
Grassroots
rideATAXIA Hometown Sunnyvale
rideATAXIA
Epic Game Day
Play board games to Cure FA!
Grassroots
rideATAXIA Philly
Save the Date! Registration to open in June.
rideATAXIA
FARA & CHOP FA Symposium
The FA Symposium is a day-long event that provides individuals and families affected by FA with up-to-date information about Friedreich’s Ataxia research and an opportunity to meet others in the community. There is an option to participate in-person or virtually.
Education
The FARA Energy Ball
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball