MESSAGE FOR FA FAMILIES

Dear FA family,

Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.

The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Visit our Understanding FA section to help you to learn about and manage FA.
Visit Understanding FA
Community members and researchers at the Napierala Lab at UT Southwestern.
LIFE CHANGING RESEARCH

Leading to the discovery and advancement of treatments for FA

Join a passionate community and change the course of this rare disease

We work in collaboration and with a sense of urgency to build strong relationships, expand knowledge, and remove uncertainty.
Two women looking at a presentation
FUNDING

Apply for a research grant and make an impact

FARA funds a competitive, peer-reviewed grant program.

COLLABORATION

Work with an experienced research community

FARA fosters meaningful relationships, helping to develop new life changing treatments for FA.

KNOWLEDGE

Utilize FARA resources to help optimize the pace of research

Benefit from our thriving and experienced research community and utilize our extensive resource library.

Visit Research section
FARA NEWS

Latest news from our community.

News | Sep 20, 2024 | News

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

Advocacy
News | Sep 17, 2024 | News

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich's Ataxia

Industry News
News | Sep 11, 2024 | News

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

FARA News, Industry News, Research
News | Sep 10, 2024 | News

Meet the 2024 FARA Fellows

FARA News, Research
News | Sep 4, 2024 | News

FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube

Education
News | Aug 27, 2024 | News

FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI) 

rideATAXIA
News | Aug 22, 2024 | News

United Against Ataxia Hill Day 2024 – Registration open!

Advocacy, FARA News
News | Aug 19, 2024 | News

August 2024 - Advocacy Newsletter

Advocacy
News | Aug 14, 2024 | News

Join us for FA Community Conversations – Genetic Medicine on August 29, 2024

Education
News | Aug 7, 2024 | News

Larimar Therapeutics Reports Several Updates on Nomlabofusp FA Program in Q2 2024 Operating and Financial Results

Industry News
News | Jul 23, 2024 | News

Job Opening – Accounting Specialist

FARA News
News | Jul 16, 2024 | News

FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable

Advocacy, FARA News
FARA events

Our upcoming events.

EVENT | Oct 7 2024

FARA & CHOP FA Symposium

The FA Symposium is a day-long event that provides individuals and families affected by FA with up-to-date information about Friedreich’s Ataxia research and an opportunity to meet others in the community. There is an option to participate in-person or virtually.

Education
Crowne Plaza – King of Prussia, King of Prussia, Pennsylvania
EVENT | Oct 19 2024

#CureFA Baseball Exhibition Game

Head Coach Tracy Archuleta and Indiana State baseball are set to host the fifth annual CUREFA Game sponsored by the West Side Nut Club!

Grassroots
Bob Warn Field, Terre Haute
EVENT | Oct 19 2024

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
JW Marriott Tampa Water Street, Tampa, Florida
EVENT | Oct 25 2024

Mattoberfest

Enjoy drinks, cornhole and food trucks!

Grassroots
Ravenous Brewing Company, Cumberland
EVENT | Nov 2 2024

rideATAXIA Dallas

rideATAXIA
Lewisville Railroad Park, Lewisville, Texas
EVENT | Nov 3 2024

Team FARA: TCS New York City Marathon

FARA has been named an Official Charity Partner for the 2024 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA). FARA's entries for this event have all been claimed. Please consider joining our waitlist should entires become available.

TeamFARA
Marathon Course, New York
EVENT | Nov 12 2024

International Congress for Ataxia Research (ICAR)

Ataxia UK, National Ataxia Foundation (NAF), Friedreich’s Ataxia Research Alliance (FARA) and Ataxia Global Initiative (AGI) are partnering to host the International Congress for Ataxia Research (ICAR) 2024.

Research
Leonardo Royal Hotel London Tower Bridge, London
EVENT | Nov 16 2024

BBQ Love Fest

BBQ Love Fest was born out of the love of Bar-B-Que, with renowned pitmasters from all over the country. Along with local Cook Teams competing for your vote as who is the best local pitmaster. Mix incredible music all day long and find out how Tampa does BBQ Love Fest. BBQ Love Fest is more than a good time, it’s a philanthropic event that supports FARA.

Grassroots
Perry Harvey Sr. Park, Tampa