The defining purpose of each of the FARA Ambassador Program projects is SUPPORT. Through committed participation, members of the FARA Ambassador Program will support the FA community and FARA's goals and mission as we move toward treatment and a cure for FA.

Current Projects:



  • Ambassador Program Blog (start date: June 2014)


    Upcoming Projects:



  • Speaking Engagements


    Ambassador Program Projects will be rolled out one by one. As a project is strong and functioning, a new one will begin. The four specified here will be the only four projects the Ambassador Program will be focusing on in 2014. Please look through each listed above and think about what area(s) you would like to be involved in.

    • Engage Project
    • Card Outreach