Please wait while your page loads ...

Kailey Newcity

NewcityMy name is Kailey Newcity, I'm 30 & I live in Lake Charles, Louisiana. I was diagnosed with FA in 2015 after originally being (mis)diagnosed with Charcot Marie Tooth Disease, as many symptoms do overlap. My diagnosis story is a long one, I went through about two years of testing at Baylor Neurology in Houston, Texas. Everything from EMG's, MRI's, extensive blood work, a spinal tap, & even a nerve biopsy. Now that I have a definite diagnosis through a genetic panel blood test I can find my place in this amazing community, learn & help spread awareness & eventually, like all of us, hope to find a cure.

Life with FA is challenging but I have an amazing amount of support, a loving boyfriend, & I find so much peace hearing others stories & advice for day to day life. I am hopeful!


SHARE
 

Ambassador Blog Archives


 
 The Archives above contain all Ambassador Blog posts. To view only a specific category, please click a button below.

Meet The Community

FARA Ambassadors

Hangouts

Privacy Policy      Service Terms      Contact      Charity Navigator