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5th Annual Swing Away at FA

Wiffle Ball Tournament & Family Fun Day Benefitting FARA Saturday, October 18, 2014 In honor of Hannah and Austin Stacks

“These past five years have been an incredible success. We are ready for another successful five years. But truthfully, I hope we are out of business by then because we have cured FA!” -Jason Stacks (Dad to Hannah & Austin)

Swing Away is held at Cabin Fever Farm, the home of Mike & Sue Thomas, generous supporters each year, in Dawsonville, Georgia, about an hour north of Atlanta. The beautiful autumn weather brought together 8 tournament teams. This year’s event had approximately 250 people in attendance and has raised $42,000 and counting with the event and the letter writing campaign combined -- reaching $185,000 total since Swing Away began in 2010!

Voyager Therapeutics Ribbon Cutting Ceremony

On October 21st I had the opportunity to go to a ribbon cutting ceremony for Voyager Therapeutics. Voyager is working on gene therapy for Friedreich’s Ataxia and a couple of other diseases of the central nervous system. I was joined at this event by my dad and another FA family. The event itself was fun: speeches and ribbon cutting followed by a tour of their place and yummy food. The Voyager staff treated us like family and kept telling us we were family. I believe them! Now they are FAmily.

Rocky Mountain Bird & Birdie

FARA was selected as the recipient charity for the Bird & Birdie Clay Shoot and Golf Tournament this year in Denver, Colorado on September 26. The tournament is an annual event where the participants spend the morning shooting at Colorado Clays Shooting Range, eating steak for lunch and then off to the Buffalo Run Golf Club for 18 holes of Golf. Altogether, the event netted over $35,000 for FARA.

Slim's Journey of Hope

It was June 2011 when our family learned of Friedreich's ataxia. We were not fortunate enough to learn of the disease through an article, a blog, or an event. We learned the hard way, with a neurologist giving us the name as the diagnosis for our 16 year old son. On that day, it felt as if we hit a brick wall going 60 miles per hour. We are the parents. We are supposed to fix everything and make everything better. But the hurdle in front of us seemed impossible. If life could be compared to a boxing match, I felt like we were down for the count.

Thankfully, with the love and grace from God, He empowered us with renewed strength. We pulled ourselves together and stood back up. We were not going to give up. We were going to keep fighting anyway we could. With no treatments and no cure, we felt helpless. And that is when we realized doing nothing was not going to be an option. We wanted to find an avenue to educate others about FA while raising funds for FARA.

Hole Out for a Cure

The Hole Out For A Cure Golf Tournament was held in Peoria, IL on September 8th. Each year we are so impressed and amazed at the local support of family, friends and area businesses in ways they contribute to make the event such a success.  This was the 7th year of Hole Out For A Cure which has raises approximately $25,000 each year. The funds are raised through event registration, silent auction items, raffle items donations and the generosity of the Peter's family matching dollar for dollar what is raised by the silent auction.

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