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Ambassador Program Projects

The defining purpose of each of the FARA Ambassador Program projects is SUPPORT. Through committed participation, members of the FARA Ambassador Program will support the FA community and FARA's goals and mission as we move toward treatment and a cure for FA.

Current Projects:



  • Ambassador Program Blog (start date: June 2014)


    Upcoming Projects:



  • Speaking Engagements


    Ambassador Program Projects will be rolled out one by one. As a project is strong and functioning, a new one will begin. The four specified here will be the only four projects the Ambassador Program will be focusing on in 2014. Please look through each listed above and think about what area(s) you would like to be involved in.

    • Engage Project
    • Card Outreach

    About the Author

    The FARA Ambassador Program

    The FARA Ambassador Program

    The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
    Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
    The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


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