Saturday 2/13 1-2 PM ET
Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. If you don't have ataxia, you are not allowed to participate in the hangout. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.
We will be talking about Rare Disease Day. It’s coming up on 2/28/21. Do you know what it is about? How do you think we’re strong when we join forces with our Rare Disease community? What can you do (virtually) to participate in Rare Disease Day?
Join us to talk or just listen. We are sure you'll find you aren't alone! It is just a relaxed conversation…the theme gets us going, but we definitely don't stick to it! It isn't counselling.
|When:||Saturdau, Sunday, February 13th, 1-2 PM ET
(The hangout opens 15 minutes early to try to work out technical issues. Please remember we are volunteers not IT professionals! Come early if you've never attended a hangout on Zoom before.)
|Who:||Teens with ataxia ages 13 to 19 (Please note: all the teens will be together)|
|Where:||On Zoom so if you have access to the internet, speakers, and a camera on your device, you can come!|
|How:||If you are under 18, you need to get your parents or guardian to download and sign this consent form. Once signed, this should be emailed to firstname.lastname@example.org. Parents/guardians can also ask questions at this email address. If you already have a signed consent form, no need to get a new one! The signed form is good until the signer revokes it. Then, email email@example.com and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout on Zoom.
18 and over: just let us know that you want to come by emailing us at firstname.lastname@example.org or email@example.com A minimum of a half hour before the hangout opens you will be sent a link to join the hangout on Zoom.
Been before? If you already have permission or you're 18+, Jean Walsh will email you the invitation to the Zoom hangout without you requesting one. You can come or not as you see fit! If you don't get one, email Jean at firstname.lastname@example.org.
Pop an email to either address if you have questions!