Name: Jonathan Zilles
Age: 37 on December 31st!
Where do you call home? Atlanta, GA
Education: BA in psychology from Auburn University
How long have you known you are living with FA? I was diagnosed at age 11. My parents noticed I had a funny gait so we went to several neurologists. They were not sure if it was FA or another form of ataxia, as the FA gene had not been discovered yet in 1990.
Are there any others with FA in your family? No, but my family took part in a research study leading up to the FRDA gene discovery. Genetic testing results showed both of my sisters are carriers.