What does progression mean? What does it mean to have a degenerative disorder? I thought it meant that with every day, things would get a little harder for me to do. Every day I would type a little slower. Every day I would be a little worse at the pegboard test.
But that’s not what it feels like to have Friedreich’s ataxia. We have good days and bad days. I know that if I am sleepy, hungry, or tired, I will have a harder time with my symptoms. and the opposite is true. If I get a good night’s sleep and have a solid breakfast, I am a pegboard test master.