FARA’s main asset in the journey toward treatments and a cure is the FA community. The community is needed to participate in the FA longitudinal study to collect data on the progression of the disease, provide blood samples for studies, participate in clinical drug trials, provide their perspective in media stories, labs, and pharma companies, and to continue pushing the effort toward the ultimate goal.
The global FA community continues to grow with partners in Canada, Europe, the middle east, and Australia. The sun literally never sets on FA research and awareness.
Brazil has joined the global FA community with multiple efforts. Dr Marcondes Franca, Jr. at University of Campinas in Sao Paulo Brazil is a neurologist who provides clinical care and is committed to research. He has been doing natural history exams, neuro and cardiac MRI research, hearing testsand is working with FARA to establish a Collaborative Clinical Research Network (CCRN) site in Brazil. All of this activity has peaked the interest of the Brazilian FA community and they are getting organized for the effort.