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Idebenone 2005-06 Phase 2 Follow-Up Study through CHOP

The Children’s Hospital of Philadelphia (CHOP) is recruiting patients with Friedreich ataxia (FRDA) who previously participated in the 2005-06 phase 2 clinical trial of Idebenone for a new follow-up study. The purpose of the new study is to better understand how the cardiac phenotype of this specific group of patients has changed since the trial. There are no interventions or research visits in this study. The research team will mainly analyze previous medical records. If you (or your child) participated in the 2005-06 NIH clinical trial of Idebenone, you are invited to contact Dr. Lin and her study team to learn more about this research project. This study is funded by the Friedreich Ataxia Research Alliance (FARA) and is taking place only at CHOP.

Please Click Here to learn more.

Anyone considering participating in a clinical trial should discuss the matter with his or her physician. FARA does not endorse or recommend any particular studies.


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