Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

Instrumented Data Exchange for Ataxia (IDEA study)

Participants are needed for a research study to test body-worn sensors to measure movement during simple tests of coordination. The goal of this study is to evaluate progression and severity of ataxia.The outcomes of this study are critical for allowing remote data collection during future clinical trials.

Eligibility criteria include:

  • Early-onset participants - 12-30 years of age with FA-onset between age 5-25
  • Late-onset participants - 26-60 years of age with FA-onset between age 25-40
  • Be able to walk 10-yards independently, without an assistive device.
  • Be able to sit and stand unassisted for at least 30 seconds.
  • Participants can be involved in an investigational drug trial and still be eligible for the IDEA study.
Participants can be involved in an investigational drug trial and still be eligible for the IDEA study.

The study involves visits every 6 months over 2 years at a clinic site. Involvement in the study provides an Apple watch.

Compensation is available for travel to study sites.

Participants are needed at all study sites in Baltimore (Johns Hopkins), Boston (MGH), Chicago (University of Chicago), Los Angeles (UCLA) or Portland (Oregon Health & Science University).

For additional eligibility criteria, please contact the site study coordinator:

University of Chicago
Study coordinator: Hannah Casey
Email: hannahcasey@uchicago.edu
Phone: (773) 702-4610

Oregon Health & Sciences University
Study coordinator: Austin Prewitt
Email: prewitta@ohsu.edu

Johns Hopkins Medical Institute
Study coordinator: Michelle Joyce
Email: mjoyce14@jhmi.edu

Massachusetts General Hospital
Study coordinator: Brigitte Jacoby
Email: BJACOBY@mgh.harvard.edu

UCLA
Study coordinator: Aaron Fisher
Email: ADFisher@mednet.ucla.edu

SHARE

FacebookTwitterLinkedInYoutube
Site Map     Privacy Policy      Service Terms      Contact      Charity Navigator