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DTSTART;TZID=UTC:20251128T184500
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CREATED:20251104T172146Z
LAST-MODIFIED:20251209T200321Z
UID:10000511-1764355500-1764369000@www.curefa.org
SUMMARY:Juip family / FBMJ Movie Fundraiser for FARA 2025
DESCRIPTION:
URL:https://give.curefa.org/event/juip-family-movie-fundraiser-for-fara-2025/e737269
LOCATION:AMC Livonia 20\, 19500 Haggerty Road\, Livonia\, MI
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251212
DTEND;VALUE=DATE:20251216
DTSTAMP:20260403T195811
CREATED:20251209T201606Z
LAST-MODIFIED:20251209T201817Z
UID:10000519-1765497600-1765843199@www.curefa.org
SUMMARY:Kendra Scott Gives Back VIRTUAL Event
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2025/12/573200092_18166157311376967_1773043986172696480_n.jpg
LOCATION:Online
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;TZID=UTC:20251214T140000
DTEND;TZID=UTC:20251214T160000
DTSTAMP:20260403T195811
CREATED:20251209T201443Z
LAST-MODIFIED:20251209T201532Z
UID:10000517-1765720800-1765728000@www.curefa.org
SUMMARY:Kendra Scott Gives Back In-Store Event
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2025/12/573200092_18166157311376967_1773043986172696480_n.jpg
LOCATION:Kendra Scott – Spring Creek Plaza\, 1452 S. Bryant Ave.\, Edmond\, OK\, 73034
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T190000
DTEND;TZID=America/New_York:20251216T200000
DTSTAMP:20260403T195811
CREATED:20251209T203411Z
LAST-MODIFIED:20251209T203411Z
UID:10000520-1765911600-1765915200@www.curefa.org
SUMMARY:FA Community Conversations: FA Cardiac Disease
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_N-RySP6rQnCn7Ot2mJtR9g#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260214T140000
DTEND;TZID=UTC:20260214T220000
DTSTAMP:20260403T195811
CREATED:20251209T200023Z
LAST-MODIFIED:20260114T202505Z
UID:10000516-1771077600-1771106400@www.curefa.org
SUMMARY:Pull for a Cure
DESCRIPTION:
URL:https://give.curefa.org/event/the-16th-pull-for-a-cure/e752317
LOCATION:Tampa Bay Sporting Clays\, 10514 Ehren Cutoff\, Land O' Lakes\, FL\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260403T195811
CREATED:20250124T162842Z
LAST-MODIFIED:20250124T163134Z
UID:10000453-1772236800-1772323199@www.curefa.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-day/2026-02-28/
LOCATION:Global
CATEGORIES:Advocacy
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BEGIN:VEVENT
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DTSTAMP:20260403T195811
CREATED:20251209T195713Z
LAST-MODIFIED:20251209T195713Z
UID:10000515-1772906400-1772920800@www.curefa.org
SUMMARY:Hope for ToMORROW
DESCRIPTION:
URL:https://www.hopefortomorrowcurefa.com/2026
LOCATION:The Bryn Mawr School\, 109 West Melrose Avenue\, Baltimore\, MD\, 21210\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260314
DTEND;VALUE=DATE:20260315
DTSTAMP:20260403T195811
CREATED:20260112T180145Z
LAST-MODIFIED:20260112T180155Z
UID:10000523-1773446400-1773532799@www.curefa.org
SUMMARY:Houston FA Research Reception
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/houston-fa-research-reception-2026/
LOCATION:Embassy Suites by Hilton The Woodlands® at Hughes Landing\, 1855 Hughes Landing Blvd\, The Woodlands\, Texas\, 77380
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260320T120000
DTEND;TZID=UTC:20260320T130000
DTSTAMP:20260403T195811
CREATED:20260305T175906Z
LAST-MODIFIED:20260305T175906Z
UID:10000535-1774008000-1774011600@www.curefa.org
SUMMARY:An Informational Webinar with Larimar Therapeutics
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_ApOMKSq6S6Wf3hXlbF4S3g#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/04/pharma-education-event-card-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260326T170000
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DTSTAMP:20260403T195811
CREATED:20260227T142048Z
LAST-MODIFIED:20260227T142048Z
UID:10000534-1774544400-1774551600@www.curefa.org
SUMMARY:FARA Young Professionals Networking Event
DESCRIPTION:
URL:https://give.curefa.org/event/fara-young-professionals-event/e773582
LOCATION:World of Beer Avion Park\, 5311 Avion Park Dr\, Tampa\, FL\, 33607
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260328T180000
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DTSTAMP:20260403T195811
CREATED:20260217T210956Z
LAST-MODIFIED:20260217T210956Z
UID:10000527-1774720800-1774738800@www.curefa.org
SUMMARY:Hope for a Cure
DESCRIPTION:
URL:https://curefa.org/hope
LOCATION:The Hope Club\, 6 Benevolent St\, Providence\, RI\, 02906
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260411T090000
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DTSTAMP:20260403T195811
CREATED:20260115T191417Z
LAST-MODIFIED:20260115T191417Z
UID:10000524-1775898000-1775912400@www.curefa.org
SUMMARY:rideATAXIA Hometown Lake Charles
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-lake-charles-2026/e754417
LOCATION:Sam Houston Jones State Park\, 107 Sutherland Road\, Lake Charles\, LA\, 70611\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
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BEGIN:VEVENT
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CREATED:20260325T140005Z
LAST-MODIFIED:20260325T143740Z
UID:10000538-1775898000-1775912400@www.curefa.org
SUMMARY:Morrow Lacrosse Challenge
DESCRIPTION:
URL:https://give.curefa.org/campaign/763636/donate
LOCATION:The Bryn Mawr School\, 109 West Melrose Avenue\, Baltimore\, MD\, 21210\, United States
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260424
DTEND;VALUE=DATE:20260425
DTSTAMP:20260403T195811
CREATED:20260206T194200Z
LAST-MODIFIED:20260206T194200Z
UID:10000526-1776988800-1777075199@www.curefa.org
SUMMARY:Torrance FA Research Reception
DESCRIPTION:
URL:https://www.curefa.org/torrance-fa-research-reception-2026/
LOCATION:Torrance Marriott Redondo Beach\, 3635 Fashion Way\, Torrance\, CA\, 90503\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260428T170000
DTEND;TZID=UTC:20260428T210000
DTSTAMP:20260403T195811
CREATED:20260201T211100Z
LAST-MODIFIED:20260327T201628Z
UID:10000528-1777395600-1777410000@www.curefa.org
SUMMARY:Raise A Glass to FARA - Wine Tasting
DESCRIPTION:
URL:https://curefa.org/wine
LOCATION:Gooseneck Vineyards\, 1340 Tower Hill Road\, North Kingstown\, RI\, 02852\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260502T103000
DTEND;TZID=UTC:20260502T103000
DTSTAMP:20260403T195811
CREATED:20250221T215430Z
LAST-MODIFIED:20260318T165323Z
UID:10000461-1777717800-1777717800@www.curefa.org
SUMMARY:rideATAXIA Hometown San Luis Obispo
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-slo-2026/e761697
LOCATION:Mulligan’s Restaurant\, 6460 Ana Bay Rd\, Avila Beach\, California\, 93424\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260509T070000
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DTSTAMP:20260403T195811
CREATED:20251210T145749Z
LAST-MODIFIED:20260218T182411Z
UID:10000522-1778310000-1778317200@www.curefa.org
SUMMARY:Tampa Bay Kids Triathlon
DESCRIPTION:
URL:https://www.tampabaykidstriathlon.com/
LOCATION:Adventure Island\, 4241 E. Bougainvillea Ave\, Tampa\, FL\, 33612\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260509T090000
DTEND;TZID=America/Los_Angeles:20260509T120000
DTSTAMP:20260403T195811
CREATED:20250224T213734Z
LAST-MODIFIED:20260115T201916Z
UID:10000462-1778317200-1778328000@www.curefa.org
SUMMARY:rideATAXIA Hometown Chico
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-chico-2026/e757503
LOCATION:Bidwell Park\, Old Chico Canyon Rd\, Chico\, CA\, 95928\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260509T100000
DTEND;TZID=UTC:20260509T140000
DTSTAMP:20260403T195811
CREATED:20250226T140606Z
LAST-MODIFIED:20260316T154245Z
UID:10000463-1778320800-1778335200@www.curefa.org
SUMMARY:New Jersey Seaside Stride
DESCRIPTION:
URL:https://give.curefa.org/seasidestride
LOCATION:Tri-Boro First Aid Squad\, 61 J Street\, Seaside Park\, NJ\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260511T150000
DTEND;TZID=America/Los_Angeles:20260511T180000
DTSTAMP:20260403T195811
CREATED:20250411T145912Z
LAST-MODIFIED:20260206T194555Z
UID:10000475-1778511600-1778522400@www.curefa.org
SUMMARY:rideATAXIA Hometown Danville
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-danville-2026/e761718
LOCATION:Danville\, CA\, Railroad Avenue\, Danville\, CA\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T120000
DTEND;TZID=America/New_York:20260601T190000
DTSTAMP:20260403T195811
CREATED:20260217T212239Z
LAST-MODIFIED:20260327T201823Z
UID:10000532-1780315200-1780340400@www.curefa.org
SUMMARY:9th Annual Race for Matt & Grace Golf Tournament
DESCRIPTION:
URL:https://rfmggolf.com/
LOCATION:Potowomut Golf Club\, 439 Ives Road\, East Greenwich\, RI\, 02818
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260613T090000
DTEND;TZID=America/Chicago:20260613T140000
DTSTAMP:20260403T195811
CREATED:20260217T211500Z
LAST-MODIFIED:20260217T211500Z
UID:10000529-1781341200-1781359200@www.curefa.org
SUMMARY:Oklahoma City FA Research Reception
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/oklahoma-research-reception/
LOCATION:Omni Oklahoma City Hotel\, 100 Oklahoma City Blvd\, Oklahoma City\, OK\, 73109\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260613T180000
DTEND;TZID=America/Chicago:20260613T220000
DTSTAMP:20260403T195811
CREATED:20251209T194430Z
LAST-MODIFIED:20251209T195820Z
UID:10000513-1781373600-1781388000@www.curefa.org
SUMMARY:Cure FA Soirée
DESCRIPTION:
URL:https://www.curefasoiree.org
LOCATION:Omni Oklahoma City Hotel\, 100 Oklahoma City Blvd\, Oklahoma City\, OK\, 73109\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260717T073000
DTEND;TZID=UTC:20260717T140000
DTSTAMP:20260403T195811
CREATED:20260309T201654Z
LAST-MODIFIED:20260327T201427Z
UID:10000536-1784273400-1784296800@www.curefa.org
SUMMARY:44th Annual Claxton Classic Golf Tournament
DESCRIPTION:
URL:https://app.smartsheet.com/b/form/019c4c5eeff67595b0b0c2c3e27bf6c4
LOCATION:Compass Pointe Golf Course\, 9010 Fort Smallwood Rd\, Pasadena\, MD\, 21122\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260719T073000
DTEND;TZID=America/Chicago:20260719T130000
DTSTAMP:20260403T195811
CREATED:20250122T183058Z
LAST-MODIFIED:20260325T210146Z
UID:10000442-1784446200-1784466000@www.curefa.org
SUMMARY:rideATAXIA Chicago 2026
DESCRIPTION:
URL:https://give.curefa.org/event/rideataxia-chicago-2026/e762552
LOCATION:Channahon Central Park\, Channahon\, IL\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAChicago.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260802T090000
DTEND;TZID=America/New_York:20260802T123000
DTSTAMP:20260403T195811
CREATED:20240530T192341Z
LAST-MODIFIED:20260302T205213Z
UID:10000025-1785661200-1785673800@www.curefa.org
SUMMARY:rideATAXIA Hometown Boston
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2026/03/rideATAXIA-Boston-2026-save-the-date.pdf
LOCATION:Lexington Visitors Center\, 1875 Massachusetts Ave\, Lexington\, MA\, 02420\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260822T120000
DTEND;TZID=UTC:20260822T160000
DTSTAMP:20260403T195811
CREATED:20260313T200526Z
LAST-MODIFIED:20260313T200843Z
UID:10000537-1787400000-1787414400@www.curefa.org
SUMMARY:Go Hog Wild for FARA!
DESCRIPTION:
URL:https://give.curefa.org/pigroast
LOCATION:Thompson Rod and Gun Club\, 93 Brandy Hill Road\, Thompson\, CT\, 06277
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260903
DTEND;VALUE=DATE:20260904
DTSTAMP:20260403T195811
CREATED:20260126T203918Z
LAST-MODIFIED:20260128T212714Z
UID:10000525-1788393600-1788479999@www.curefa.org
SUMMARY:Peace Love ACCESSibility Event
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2026/01/2026-PLA-FARA-Save-The-Date.pdf
LOCATION:The Owenego\, 40 Linden Ave.\, Branford\, CT\, 06405\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260926T083000
DTEND;TZID=UTC:20260926T140000
DTSTAMP:20260403T195811
CREATED:20260217T211809Z
LAST-MODIFIED:20260217T211931Z
UID:10000530-1790411400-1790431200@www.curefa.org
SUMMARY:Race for Matt & Grace
DESCRIPTION:
URL:https://curefa.org/rfmg
LOCATION:Rhode Island College\, 600 Mount Pleasant Ave.\, Providence\, RI\, 02908
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261011T073000
DTEND;TZID=America/New_York:20261011T130000
DTSTAMP:20260403T195811
CREATED:20250122T184629Z
LAST-MODIFIED:20251211T142546Z
UID:10000443-1791703800-1791723600@www.curefa.org
SUMMARY:rideATAXIA Philly 2026
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2025/12/rideATAXIA-Philly-2026-save-the-date.pdf
LOCATION:Montgomery County Community College\, 340 DeKalb Pike\, Blue Bell\, PA\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAPhilly.png
END:VEVENT
END:VCALENDAR