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UID:10000017-1717869600-1717884000@www.curefa.org
SUMMARY:Cure FA Soirée
DESCRIPTION:
URL:https://www.curefasoiree.org
LOCATION:Hilton Garden Inn\, Edmond\, OK\, United States
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240628
DTEND;VALUE=DATE:20240629
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CREATED:20240531T160946Z
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UID:10000412-1719532800-1719619199@www.curefa.org
SUMMARY:Fine Arts for FA: Rock of Ages
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-rock-of-ages/2024-06-28/
LOCATION:O’Gorman High School\, 3201 S Kiwanis Ave\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240629
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SUMMARY:Fine Arts for FA: Rock of Ages
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-rock-of-ages/2024-06-29/
LOCATION:O’Gorman High School\, 3201 S Kiwanis Ave\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
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DESCRIPTION:
URL:https://give.curefa.org/team/560582
LOCATION:Umling La\, Ladakh\, India
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UID:10000414-1719705600-1719791999@www.curefa.org
SUMMARY:Fine Arts for FA: Rock of Ages
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-rock-of-ages/2024-06-30/
LOCATION:O’Gorman High School\, 3201 S Kiwanis Ave\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
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SUMMARY:Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials
DESCRIPTION:
URL:https://hma.connect.space/pediatric-inclusion-roundtable/details
LOCATION:Leavitt Partners & Virtual\, 601 New Jersey Avenue Northwest\, Washington\, DC\, DC\, 20001\, United States
CATEGORIES:Advocacy
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CREATED:20240530T205921Z
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UID:10000028-1721374200-1721397600@www.curefa.org
SUMMARY:42nd Annual Claxton Classic Golf Tournament
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2024/05/ClaxtonClassic-Flyer-2024_v3.pdf
LOCATION:Compass Pointe Golf Course\, 9010 Fort Smallwood Rd\, Pasadena\, MD\, 21122\, United States
CATEGORIES:Grassroots
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CREATED:20240308T104145Z
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UID:10000018-1721433600-1721519999@www.curefa.org
SUMMARY:FA Research Reception Chicago
DESCRIPTION:
URL:https://give.curefa.org/event/research-reception-naperville-lisle-il/e570364
LOCATION:Hyatt Regency Lisle\, Lisle\, IL\, United States
CATEGORIES:Education
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CREATED:20240308T105502Z
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UID:10000019-1721520000-1721606399@www.curefa.org
SUMMARY:rideATAXIA Chicago
DESCRIPTION:
URL:https://rideataxia.org/chicago
LOCATION:Channahon Central Park\, Channahon\, IL\, United States
CATEGORIES:rideATAXIA
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SUMMARY:Fine Arts for FA: Curtain Call for a Cure
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-curtain-call-for-a-cure/2024-07-26/
LOCATION:Lincoln High School\, 2900 South Cliff Avenue\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
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SUMMARY:Fine Arts for FA: Curtain Call for a Cure
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LOCATION:Lincoln High School\, 2900 South Cliff Avenue\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
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CREATED:20240531T173242Z
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UID:10000404-1722630600-1722634200@www.curefa.org
SUMMARY:Daniel Price Streaming Live
DESCRIPTION:
URL:https://give.curefa.org/campaign/daniel-price-live/c585442
LOCATION:Virtual
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240811
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CREATED:20240531T173754Z
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UID:10000406-1723334400-1723420799@www.curefa.org
SUMMARY:Rock 'N' Jock Charities: Night of Entertainment
DESCRIPTION:
URL:https://rocknjockcharities.com/
LOCATION:The Crowne Plaza Warwick\, 801 Greenwich Ave\, Warwick\, RI\, 02886
CATEGORIES:Grassroots
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DTEND;VALUE=DATE:20240813
DTSTAMP:20260403T225924
CREATED:20240531T173642Z
LAST-MODIFIED:20240531T173642Z
UID:10000405-1723420800-1723507199@www.curefa.org
SUMMARY:Rock 'N' Jock Charities: Golf Tournament
DESCRIPTION:
URL:https://rocknjockcharities.com/
LOCATION:Potowomut Golf Club\, 439 Ives Road\, East Greenwich\, RI\, 02818
CATEGORIES:Grassroots
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CREATED:20240531T185601Z
LAST-MODIFIED:20240715T171224Z
UID:10000026-1724504400-1724520600@www.curefa.org
SUMMARY:FA Research Reception Tacoma
DESCRIPTION:
URL:https://give.curefa.org/WAResearchReception
LOCATION:Hotel Murano\, 1320 Broadway\, Tacoma\, WA\, 98402\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
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UID:10000420-1724932800-1724936400@www.curefa.org
SUMMARY:FA Community Conversations | Genetic Medicine
DESCRIPTION:
URL:https://www.curefa.org/fa-community-conversations-webinar-genetic-medicine-august-2024/
LOCATION:Virtual
CATEGORIES:Education
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CREATED:20240823T203955Z
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SUMMARY:An Informational Webinar hosted by Astellas Pharma
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_P7ekyt2YSJavhPVftc0hug#/registration
LOCATION:Virtual
CATEGORIES:Education
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CREATED:20240308T105018Z
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SUMMARY:Fuzzy Buzzy Charity Golf Tournament
DESCRIPTION:
URL:https://app.eventcaddy.com/events/fuzzy-buzzy-charity-golf-tournament
LOCATION:Windham Country Club\, 1 Country Club Drive\, Windham\, NH\, 03087\, United States
CATEGORIES:Grassroots
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DTEND;VALUE=DATE:20240914
DTSTAMP:20260403T225924
CREATED:20240627T163218Z
LAST-MODIFIED:20251209T200258Z
UID:10000415-1726185600-1726271999@www.curefa.org
SUMMARY:Golf-ATAXIA 18 Hole Scramble 2024
DESCRIPTION:
URL:https://give.curefa.org/campaign/golfataxia-2024/c597244
LOCATION:Brentwood Golf Club\, 2450 Havenwood Dr\, White Lake\, Michigan\, 48383
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240914T080000
DTEND;TZID=America/Chicago:20240914T133000
DTSTAMP:20260403T225924
CREATED:20240711T132953Z
LAST-MODIFIED:20240826T153936Z
UID:10000417-1726300800-1726320600@www.curefa.org
SUMMARY:rideATAXIA Hometown Twin Cities
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-twin-cities-2024/e584593
LOCATION:Wakefield Park Community Building\, 1860 Hazelwood St\, Maplewood\, MN\, 55109\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240921T083000
DTEND;TZID=UTC:20240921T140000
DTSTAMP:20260403T225924
CREATED:20240531T174149Z
LAST-MODIFIED:20240531T174231Z
UID:10000407-1726907400-1726927200@www.curefa.org
SUMMARY:Race for Matt & Grace
DESCRIPTION:
URL:https://curefa.org/rfmg
LOCATION:Rhode Island College\, 600 Mount Pleasant Ave.\, Providence\, RI\, 02908
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240921T140000
DTEND;TZID=America/New_York:20240921T170000
DTSTAMP:20260403T225924
CREATED:20240820T191542Z
LAST-MODIFIED:20240826T175446Z
UID:10000422-1726927200-1726938000@www.curefa.org
SUMMARY:rideATAXIA Hometown Ann Arbor
DESCRIPTION:
URL:https://give.curefa.org/team/576856
LOCATION:Dexter\, MI\, 8080 Grand St\, Dexter\, MI\, 48130\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
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DTSTART;TZID=America/New_York:20240924T120000
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CREATED:20240823T204214Z
LAST-MODIFIED:20240830T151144Z
UID:10000425-1727179200-1727182800@www.curefa.org
SUMMARY:An Informational Webinar hosted by Lexeo Therapeutics
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_44oWea6PQYy50UeR2lmdlg#/registration
LOCATION:Virtual
CATEGORIES:Education
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240925T090000
DTEND;TZID=America/New_York:20240925T170000
DTSTAMP:20260403T225924
CREATED:20240815T170318Z
LAST-MODIFIED:20240830T151216Z
UID:10000421-1727254800-1727283600@www.curefa.org
SUMMARY:6th United Against Ataxia Hill Day
DESCRIPTION:
URL:https://www.curefa.org/get-involved/advocate/current-initiatives/united-against-ataxia-hill-day/
LOCATION:Virtual
CATEGORIES:Advocacy
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240926T180000
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CREATED:20240531T174514Z
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UID:10000408-1727373600-1727388000@www.curefa.org
SUMMARY:Living with Purpose - An Evening to Cure FA 2024
DESCRIPTION:
URL:https://give.curefa.org/purpose
LOCATION:The Owenego\, 40 Linden Ave.\, Branford\, CT\, 06405\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240928T180000
DTEND;TZID=America/Halifax:20240928T220000
DTSTAMP:20260403T225924
CREATED:20240731T205757Z
LAST-MODIFIED:20240906T142641Z
UID:10000419-1727546400-1727560800@www.curefa.org
SUMMARY:Drive-In Movie Fundraiser for FARA
DESCRIPTION:
URL:https://give.curefa.org/juipmovie
LOCATION:Parking Lot of FBMJ’s Offices\, 38777 Six Mile Road\, Livonia\, MI\, 48152\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241005
DTEND;VALUE=DATE:20241006
DTSTAMP:20260403T225924
CREATED:20240820T194044Z
LAST-MODIFIED:20240826T175058Z
UID:10000423-1728086400-1728172799@www.curefa.org
SUMMARY:rideATAXIA Hometown Sunnyvale
DESCRIPTION:
URL:https://give.curefa.org/team/599693
LOCATION:Sunnyvale\, CA\, Sunnyvale\, CA\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241005T120000
DTEND;TZID=America/Denver:20241005T190000
DTSTAMP:20260403T225924
CREATED:20240531T174917Z
LAST-MODIFIED:20240904T181359Z
UID:10000409-1728129600-1728154800@www.curefa.org
SUMMARY:Epic Game Day
DESCRIPTION:
URL:https://give.curefa.org/epicgameday
LOCATION:Natural Twenty Games\, 4136 E Sunset Road\, Henderson\, NV\, 89014
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241006
DTEND;VALUE=DATE:20241007
DTSTAMP:20260403T225924
CREATED:20240308T105521Z
LAST-MODIFIED:20240308T105521Z
UID:10000021-1728172800-1728259199@www.curefa.org
SUMMARY:rideATAXIA Philly
DESCRIPTION:
URL:https://rideataxia.org/philly
LOCATION:Montgomery County Community College\, 340 DeKalb Pike\, Blue Bell\, PA\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAPhilly.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241007
DTEND;VALUE=DATE:20241008
DTSTAMP:20260403T225924
CREATED:20240308T110146Z
LAST-MODIFIED:20240709T164423Z
UID:10000022-1728259200-1728345599@www.curefa.org
SUMMARY:FARA & CHOP FA Symposium
DESCRIPTION:
URL:https://give.curefa.org/event/fara-and-chop-fa-symposium-2024/e590771
LOCATION:Crowne Plaza – King of Prussia\, 260 Mall Boulevard\, King of Prussia\, PA\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
END:VCALENDAR