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DTSTART;TZID=America/New_York:20250121T120000
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DTSTAMP:20260403T225950
CREATED:20250103T213652Z
LAST-MODIFIED:20250103T220521Z
UID:10000434-1737460800-1737464400@www.curefa.org
SUMMARY:An Informational Webinar hosted by PTC Therapeutics
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/ptc-therapeutics-informational-webinar-on-january-21-2025/
LOCATION:Virtual
CATEGORIES:Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250201T180000
DTEND;TZID=America/New_York:20250201T220000
DTSTAMP:20260403T225950
CREATED:20241017T134812Z
LAST-MODIFIED:20241017T135050Z
UID:10000428-1738432800-1738447200@www.curefa.org
SUMMARY:Runway to the Cure
DESCRIPTION:
URL:https://give.curefa.org/event/runway-to-the-cure-2025/e614377
LOCATION:Banyan Air\, 1710 NW 62 Street\, Fort Lauderdale\, FL\, 33309\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250208T130000
DTEND;TZID=UTC:20250208T173000
DTSTAMP:20260403T225950
CREATED:20241218T175114Z
LAST-MODIFIED:20241218T175400Z
UID:10000432-1739019600-1739035800@www.curefa.org
SUMMARY:FA Research Reception - Chandler\, AZ
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/phoenix-research-reception-2025/
LOCATION:Hilton Phoenix Chandler\, 2929 West Frye Road\, Chandler\, 85224\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250224
DTEND;VALUE=DATE:20250227
DTSTAMP:20260403T225950
CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000449-1740355200-1740614399@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-24/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250225
DTEND;VALUE=DATE:20250228
DTSTAMP:20260403T225950
CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000450-1740441600-1740700799@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-25/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250226
DTEND;VALUE=DATE:20250301
DTSTAMP:20260403T225950
CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000451-1740528000-1740787199@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-26/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
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DTSTART;VALUE=DATE:20250227
DTEND;VALUE=DATE:20250301
DTSTAMP:20260403T225950
CREATED:20250124T160821Z
LAST-MODIFIED:20250207T151726Z
UID:10000447-1740614400-1740787199@www.curefa.org
SUMMARY:Rare Disease Day at NIH & FDA
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c/2025-02-27/
LOCATION:Natcher Conference Center\, NIH Building 45\, Bethesda\, MD\, 20894\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/FDA-NIH-Rare-DIsease-Day.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260403T225950
CREATED:20250124T162842Z
LAST-MODIFIED:20250124T163134Z
UID:10000452-1740700800-1740787199@www.curefa.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-day/2025-02-28/
LOCATION:Global
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Advocacy.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250302
DTSTAMP:20260403T225950
CREATED:20250124T160821Z
LAST-MODIFIED:20250207T151726Z
UID:10000448-1740700800-1740873599@www.curefa.org
SUMMARY:Rare Disease Day at NIH & FDA
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c/2025-02-28/
LOCATION:Natcher Conference Center\, NIH Building 45\, Bethesda\, MD\, 20894\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/FDA-NIH-Rare-DIsease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T120000
DTEND;TZID=America/Halifax:20250402T130000
DTSTAMP:20260403T225950
CREATED:20250402T194218Z
LAST-MODIFIED:20250402T194218Z
UID:10000473-1743595200-1743598800@www.curefa.org
SUMMARY:FARA Flask Talks Session #2
DESCRIPTION:FARA Flask Talks Session #2
URL:https://us02web.zoom.us/webinar/register/WN_syMSadV7RWWHpGA9zzH6ow
LOCATION:Virtual
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250403T120000
DTEND;TZID=America/New_York:20250403T130000
DTSTAMP:20260403T225950
CREATED:20250321T200959Z
LAST-MODIFIED:20250321T200959Z
UID:10000466-1743681600-1743685200@www.curefa.org
SUMMARY:Community Conversations: The Power of Advocacy for FA Research
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_NWSqKzf4Rhmb6cleycA_ng#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250404T053000
DTEND;TZID=America/New_York:20250404T193000
DTSTAMP:20260403T225950
CREATED:20250219T171547Z
LAST-MODIFIED:20250219T204911Z
UID:10000460-1743744600-1743795000@www.curefa.org
SUMMARY:University of Florida FA Forum: Research\, Wellness\, and Community Conversations
DESCRIPTION:
URL:https://forms.office.com/pages/responsepage.aspx?id=UQbJjJ7upEKjIflQqfa7EDJvGKOjdCpClDbQbr_cy45UQUlXWlBYQlJDNVFPS1FZTFZCQUhZNzNTUS4u&route=shorturl
LOCATION:UF Clinical and Translational Science Institute\, 2004 Mowry Rd\, Gainesville\, FL\, 32603\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/02/uf-event.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250405T090000
DTEND;TZID=UTC:20250405T133000
DTSTAMP:20260403T225950
CREATED:20241219T155512Z
LAST-MODIFIED:20241219T155512Z
UID:10000433-1743843600-1743859800@www.curefa.org
SUMMARY:rideATAXIA Gainesville 2025
DESCRIPTION:
URL:https://give.curefa.org/event/rideataxia-gainesville-2025/e644042
LOCATION:Depot Park\, 874 SE 4 St\, Gainesville\, FL\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAGainesville.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250412
DTEND;VALUE=DATE:20250413
DTSTAMP:20260403T225950
CREATED:20250207T212439Z
LAST-MODIFIED:20251209T200347Z
UID:10000459-1744416000-1744502399@www.curefa.org
SUMMARY:Morrow Lacrosse Challenge 2025
DESCRIPTION:
URL:https://give.curefa.org/campaign/morrow-lacrosse-challenge-2025/c660570
LOCATION:The Bryn Mawr School\, 109 West Melrose Avenue\, Baltimore\, MD\, 21210\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250412T140000
DTEND;TZID=UTC:20250412T220000
DTSTAMP:20260403T225950
CREATED:20250122T215303Z
LAST-MODIFIED:20250122T215303Z
UID:10000445-1744466400-1744495200@www.curefa.org
SUMMARY:The 15th Pull for a Cure
DESCRIPTION:
URL:https://give.curefa.org/event/the-15th-pull-for-a-cure/e655551
LOCATION:Tampa Bay Sporting Clays\, 10514 Ehren Cutoff\, Land O' Lakes\, FL\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250412T180000
DTEND;TZID=UTC:20250412T220000
DTSTAMP:20260403T225950
CREATED:20250122T182626Z
LAST-MODIFIED:20250122T182705Z
UID:10000441-1744480800-1744495200@www.curefa.org
SUMMARY:Burrows Hill Foundation Night to Fight FA
DESCRIPTION:
URL:https://www.burrows-hill.org/
LOCATION:Akerson Tower\, Navy Marine Corps Memorial Stadium\, 550 Taylor Ave\, Annapolis\, MD\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250415T120000
DTEND;TZID=America/Halifax:20250415T130000
DTSTAMP:20260403T225950
CREATED:20250402T193528Z
LAST-MODIFIED:20250403T133916Z
UID:10000469-1744718400-1744722000@www.curefa.org
SUMMARY:An Informational Session with Solid Biosciences
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_22LiMHTHTualELRNlq9qbQ
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/04/pharma-education-event-card-1.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250419T071500
DTEND;TZID=UTC:20250419T090000
DTSTAMP:20260403T225950
CREATED:20250122T220014Z
LAST-MODIFIED:20250122T220014Z
UID:10000446-1745046900-1745053200@www.curefa.org
SUMMARY:11th Annual Tampa Bay Kids Triathlon
DESCRIPTION:
URL:https://www.tampabaykidstriathlon.com/
LOCATION:Adventure Island\, 4241 E. Bougainvillea Ave\, Tampa\, FL\, 33612\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250426T130000
DTEND;TZID=UTC:20250426T173000
DTSTAMP:20260403T225950
CREATED:20250227T213021Z
LAST-MODIFIED:20250227T213811Z
UID:10000464-1745672400-1745688600@www.curefa.org
SUMMARY:FA Research Reception – Charlotte\, NC
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/charlotte-research-reception-2025/
LOCATION:Charlotte Marriott SouthPark Hotel\, 2200 Rexford Rd\, Charlotte\, NC\, 28211\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T110000
DTEND;TZID=America/New_York:20250503T180000
DTSTAMP:20260403T225950
CREATED:20240531T175626Z
LAST-MODIFIED:20241115T200042Z
UID:10000411-1746270000-1746295200@www.curefa.org
SUMMARY:BBQ Love Fest
DESCRIPTION:
URL:https://bbqlovefest.com
LOCATION:Perry Harvey Sr. Park\, 90 E Scott St.\, Tampa\, FL\, 33602
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250506T170000
DTEND;TZID=UTC:20250506T210000
DTSTAMP:20260403T225950
CREATED:20250327T171935Z
LAST-MODIFIED:20250327T171935Z
UID:10000467-1746550800-1746565200@www.curefa.org
SUMMARY:Raise A Glass to FARA - Wine Tasting
DESCRIPTION:
URL:https://curefa.org/wine
LOCATION:Gooseneck Vineyards\, 1340 Tower Hill Road\, North Kingstown\, RI\, 02852\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250507T120000
DTEND;TZID=America/Halifax:20250507T130000
DTSTAMP:20260403T225950
CREATED:20250402T193902Z
LAST-MODIFIED:20250402T204845Z
UID:10000470-1746619200-1746622800@www.curefa.org
SUMMARY:FARA Flash Talks Session #1
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_02BcPJjsTRitOib6gnJa8A
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250515T120000
DTEND;TZID=America/Halifax:20250515T130000
DTSTAMP:20260403T225950
CREATED:20250402T194012Z
LAST-MODIFIED:20250429T194244Z
UID:10000471-1747310400-1747314000@www.curefa.org
SUMMARY:An Informational Session with Lexeo Therapeutics
DESCRIPTION:An Informational Session with Lexeo Therapeutics
URL:https://us02web.zoom.us/webinar/register/WN_9TiX-s5FT_2JfeiECU99AQ#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/04/pharma-education-event-card-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250522T120000
DTEND;TZID=UTC:20250522T130000
DTSTAMP:20260403T225950
CREATED:20250402T194119Z
LAST-MODIFIED:20250403T195409Z
UID:10000472-1747915200-1747918800@www.curefa.org
SUMMARY:An Informational Session with Biogen
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_8Y8bUgshQ22cy1b8HCOMOA#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/04/pharma-education-event-card-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250528T120000
DTEND;TZID=America/Halifax:20250528T130000
DTSTAMP:20260403T225950
CREATED:20250402T194558Z
LAST-MODIFIED:20250402T204816Z
UID:10000474-1748433600-1748437200@www.curefa.org
SUMMARY:FARA Flask Talks Session #2
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_syMSadV7RWWHpGA9zzH6ow
LOCATION:MD
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250606T190000
DTEND;TZID=UTC:20250606T210000
DTSTAMP:20260403T225950
CREATED:20250501T184518Z
LAST-MODIFIED:20250501T184518Z
UID:10000480-1749236400-1749243600@www.curefa.org
SUMMARY:Fine Arts for FA: Shrek the Musical
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-shrek-the-musical/2025-06-06/
LOCATION:O’Gorman High School\, 3201 S Kiwanis Ave\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T093000
DTEND;TZID=America/Chicago:20250607T130000
DTSTAMP:20260403T225950
CREATED:20250122T163249Z
LAST-MODIFIED:20250424T193051Z
UID:10000435-1749288600-1749301200@www.curefa.org
SUMMARY:FA Research Reception – Oklahoma City\, OK
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/oklahoma-research-reception-brunch-2025/
LOCATION:Vast OKC\, 333 W Sheridan Ave.\, Oklahoma City\, OK\, 73102\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250607T120000
DTEND;TZID=UTC:20250607T160000
DTSTAMP:20260403T225950
CREATED:20250327T185629Z
LAST-MODIFIED:20251209T200237Z
UID:10000468-1749297600-1749312000@www.curefa.org
SUMMARY:Go Hog Wild for FARA! 2025
DESCRIPTION:
URL:https://give.curefa.org/pigroast
LOCATION:Portuguese American Social Club\, 32 Fenwood Avenue\, Smithfield\, RI\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250607T180000
DTEND;TZID=America/Chicago:20250607T220000
DTSTAMP:20260403T225950
CREATED:20241017T150603Z
LAST-MODIFIED:20250424T193357Z
UID:10000429-1749319200-1749333600@www.curefa.org
SUMMARY:Cure FA Soirée
DESCRIPTION:
URL:https://www.curefasoiree.org
LOCATION:Omni Oklahoma City Hotel\, 100 Oklahoma City Blvd\, Oklahoma City\, OK\, 73109\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250607T190000
DTEND;TZID=UTC:20250607T210000
DTSTAMP:20260403T225950
CREATED:20250501T184518Z
LAST-MODIFIED:20250501T184518Z
UID:10000481-1749322800-1749330000@www.curefa.org
SUMMARY:Fine Arts for FA: Shrek the Musical
DESCRIPTION:
URL:https://www.curefa.org/event/fine-arts-for-fa-shrek-the-musical/2025-06-07/
LOCATION:O’Gorman High School\, 3201 S Kiwanis Ave\, Sioux Falls\, SD\, 57105
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
END:VCALENDAR