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CREATED:20250826T202129Z
LAST-MODIFIED:20250826T204439Z
UID:10000505-1758356100-1758369600@www.curefa.org
SUMMARY:rideATAXIA Hometown St. Louis
DESCRIPTION:
URL:https://give.curefa.org/team/659254
LOCATION:Hammerstone’s\, 2028 S 9th St\, Saint Louis\, MO\, 63104\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
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DTSTART;TZID=UTC:20250920T083000
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CREATED:20250501T185028Z
LAST-MODIFIED:20250501T185028Z
UID:10000484-1758357000-1758376800@www.curefa.org
SUMMARY:Race for Matt & Grace
DESCRIPTION:
URL:https://curefa.org/rfmg
LOCATION:Rhode Island College\, 600 Mount Pleasant Ave.\, Providence\, RI\, 02908
CATEGORIES:Grassroots
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CREATED:20250904T134341Z
LAST-MODIFIED:20250904T183132Z
UID:10000507-1758369600-1758384000@www.curefa.org
SUMMARY:Fall for FARA to benefit rideATAXIA Team Megan
DESCRIPTION:
URL:https://give.curefa.org/fundraiser/6524281
LOCATION:Pelham Falls Clubhouse\, 6 Chatley Way\, Greer\, SC\, 29651
CATEGORIES:rideATAXIA
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LAST-MODIFIED:20250811T163408Z
UID:10000488-1758445200-1758461400@www.curefa.org
SUMMARY:rideATAXIA Hometown Twin Cities
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-twin-cities-2025/e692783
LOCATION:Schaar’s Bluff Gathering Center\, 8395 127th St E\, Hastings\, MN\, 55033
CATEGORIES:rideATAXIA,rideATAXIA Hometown
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CREATED:20250122T172702Z
LAST-MODIFIED:20250723T200636Z
UID:10000439-1758967200-1758976200@www.curefa.org
SUMMARY:USF Research Reception Brunch
DESCRIPTION:
URL:https://give.curefa.org/event/fa-research-reception-brunch-hosted-by-usf-and-fara/e697455
LOCATION:USF Health Morsani College of Medicine &   Heart Institute\, 560 Channelside Dr\, Tampa\, 33602\, United States
CATEGORIES:Education
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CREATED:20250702T183027Z
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SUMMARY:Fuzzy Buzzy Charity Golf Tournament 2025
DESCRIPTION:
URL:https://app.eventcaddy.com/events/2025-fuzzy-buzzy-charity-golf-tournament
LOCATION:Windham Country Club\, 1 Country Club Drive\, Windham\, NH\, 03087\, United States
CATEGORIES:Grassroots
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SUMMARY:Epic Game Day
DESCRIPTION:
URL:https://give.curefa.org/epicgameday
LOCATION:Natural Twenty Games\, 4136 E Sunset Road\, Henderson\, NV\, 89014
CATEGORIES:Grassroots
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CREATED:20250730T145056Z
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UID:10000500-1759604400-1759609200@www.curefa.org
SUMMARY:World Renowned Magician Chris Dugdale Benefit Performance
DESCRIPTION:
URL:https://app.smartsheet.com/b/form/0195b3ed04a671419bc8b27f92728c76
LOCATION:Calvary United Methodist Church\, 301 Rowe Blvd\, Annapolis\, MD\, 21401\, United States
CATEGORIES:Grassroots
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CREATED:20251001T202412Z
LAST-MODIFIED:20251001T202412Z
UID:10000508-1760288400-1760293800@www.curefa.org
SUMMARY:Welcome Reception (FA Symposium)
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/chop-fara-fa-symposium-2025/
LOCATION:Crowne Plaza – King of Prussia\, 260 Mall Boulevard\, King of Prussia\, PA\, United States
CATEGORIES:Education
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CREATED:20251002T193657Z
LAST-MODIFIED:20251002T193932Z
UID:10000509-1761400800-1761415200@www.curefa.org
SUMMARY:#CureFA Baseball Exhibition Game
DESCRIPTION:
URL:https://give.curefa.org/curefabaseball
LOCATION:Bob Warn Field\, 931 N 1st St\, Terre Haute\, IN\, 47807
CATEGORIES:Grassroots
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UID:10000491-1761411600-1761429600@www.curefa.org
SUMMARY:Mattoberfest 2025
DESCRIPTION:
URL:https://curefa.org/fest
LOCATION:Narragansett Brewery\, 271 Tockwotton Street\, Providence\, RI\, 02903
CATEGORIES:Grassroots
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CREATED:20250609T211119Z
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UID:10000493-1762041600-1762127999@www.curefa.org
SUMMARY:Team FARA: TCS New York City Marathon
DESCRIPTION:
URL:https://give.curefa.org/nyc
LOCATION:new york\, Thoughout the City\, New York\, NY\, United States
CATEGORIES:Grassroots,TeamFARA
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CREATED:20250122T204228Z
LAST-MODIFIED:20250731T151215Z
UID:10000444-1762560000-1762646399@www.curefa.org
SUMMARY:rideATAXIA Dallas 2025
DESCRIPTION:
URL:https://give.curefa.org/event/rideataxia-dallas-2025/e703119
LOCATION:Lewisville Railroad Park\, Lewisville\, TX\, United States
CATEGORIES:rideATAXIA
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CREATED:20251002T194152Z
LAST-MODIFIED:20251002T195216Z
UID:10000510-1763204400-1763222400@www.curefa.org
SUMMARY:Poker Run to Cure FA
DESCRIPTION:
URL:https://give.curefa.org/event/poker-run-2025/e728655
LOCATION:Armstrong Park – Vian Community Center\, 1011 North Thornton Street\, Vian\, OK
CATEGORIES:Grassroots
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CREATED:20251104T172146Z
LAST-MODIFIED:20251209T200321Z
UID:10000511-1764355500-1764369000@www.curefa.org
SUMMARY:Juip family / FBMJ Movie Fundraiser for FARA 2025
DESCRIPTION:
URL:https://give.curefa.org/event/juip-family-movie-fundraiser-for-fara-2025/e737269
LOCATION:AMC Livonia 20\, 19500 Haggerty Road\, Livonia\, MI
CATEGORIES:Grassroots
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BEGIN:VEVENT
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CREATED:20251209T201606Z
LAST-MODIFIED:20251209T201817Z
UID:10000519-1765497600-1765843199@www.curefa.org
SUMMARY:Kendra Scott Gives Back VIRTUAL Event
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2025/12/573200092_18166157311376967_1773043986172696480_n.jpg
LOCATION:Online
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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DTSTAMP:20260403T220500
CREATED:20251209T201443Z
LAST-MODIFIED:20251209T201532Z
UID:10000517-1765720800-1765728000@www.curefa.org
SUMMARY:Kendra Scott Gives Back In-Store Event
DESCRIPTION:
URL:https://www.curefa.org/wp-content/uploads/2025/12/573200092_18166157311376967_1773043986172696480_n.jpg
LOCATION:Kendra Scott – Spring Creek Plaza\, 1452 S. Bryant Ave.\, Edmond\, OK\, 73034
CATEGORIES:Grassroots
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CREATED:20251209T203411Z
LAST-MODIFIED:20251209T203411Z
UID:10000520-1765911600-1765915200@www.curefa.org
SUMMARY:FA Community Conversations: FA Cardiac Disease
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_N-RySP6rQnCn7Ot2mJtR9g#/registration
LOCATION:Virtual
CATEGORIES:Education
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DTSTAMP:20260403T220500
CREATED:20251209T200023Z
LAST-MODIFIED:20260114T202505Z
UID:10000516-1771077600-1771106400@www.curefa.org
SUMMARY:Pull for a Cure
DESCRIPTION:
URL:https://give.curefa.org/event/the-16th-pull-for-a-cure/e752317
LOCATION:Tampa Bay Sporting Clays\, 10514 Ehren Cutoff\, Land O' Lakes\, FL\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260403T220500
CREATED:20250124T162842Z
LAST-MODIFIED:20250124T163134Z
UID:10000453-1772236800-1772323199@www.curefa.org
SUMMARY:Rare Disease Day
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-day/2026-02-28/
LOCATION:Global
CATEGORIES:Advocacy
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260307T180000
DTEND;TZID=UTC:20260307T220000
DTSTAMP:20260403T220500
CREATED:20251209T195713Z
LAST-MODIFIED:20251209T195713Z
UID:10000515-1772906400-1772920800@www.curefa.org
SUMMARY:Hope for ToMORROW
DESCRIPTION:
URL:https://www.hopefortomorrowcurefa.com/2026
LOCATION:The Bryn Mawr School\, 109 West Melrose Avenue\, Baltimore\, MD\, 21210\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260314
DTEND;VALUE=DATE:20260315
DTSTAMP:20260403T220500
CREATED:20260112T180145Z
LAST-MODIFIED:20260112T180155Z
UID:10000523-1773446400-1773532799@www.curefa.org
SUMMARY:Houston FA Research Reception
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/houston-fa-research-reception-2026/
LOCATION:Embassy Suites by Hilton The Woodlands® at Hughes Landing\, 1855 Hughes Landing Blvd\, The Woodlands\, Texas\, 77380
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260320T120000
DTEND;TZID=UTC:20260320T130000
DTSTAMP:20260403T220500
CREATED:20260305T175906Z
LAST-MODIFIED:20260305T175906Z
UID:10000535-1774008000-1774011600@www.curefa.org
SUMMARY:An Informational Webinar with Larimar Therapeutics
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_ApOMKSq6S6Wf3hXlbF4S3g#/registration
LOCATION:Virtual
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/04/pharma-education-event-card-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260326T170000
DTEND;TZID=UTC:20260326T190000
DTSTAMP:20260403T220500
CREATED:20260227T142048Z
LAST-MODIFIED:20260227T142048Z
UID:10000534-1774544400-1774551600@www.curefa.org
SUMMARY:FARA Young Professionals Networking Event
DESCRIPTION:
URL:https://give.curefa.org/event/fara-young-professionals-event/e773582
LOCATION:World of Beer Avion Park\, 5311 Avion Park Dr\, Tampa\, FL\, 33607
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260328T180000
DTEND;TZID=UTC:20260328T230000
DTSTAMP:20260403T220500
CREATED:20260217T210956Z
LAST-MODIFIED:20260217T210956Z
UID:10000527-1774720800-1774738800@www.curefa.org
SUMMARY:Hope for a Cure
DESCRIPTION:
URL:https://curefa.org/hope
LOCATION:The Hope Club\, 6 Benevolent St\, Providence\, RI\, 02906
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260411T090000
DTEND;TZID=UTC:20260411T130000
DTSTAMP:20260403T220500
CREATED:20260115T191417Z
LAST-MODIFIED:20260115T191417Z
UID:10000524-1775898000-1775912400@www.curefa.org
SUMMARY:rideATAXIA Hometown Lake Charles
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-lake-charles-2026/e754417
LOCATION:Sam Houston Jones State Park\, 107 Sutherland Road\, Lake Charles\, LA\, 70611\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260411T090000
DTEND;TZID=UTC:20260411T130000
DTSTAMP:20260403T220500
CREATED:20260325T140005Z
LAST-MODIFIED:20260325T143740Z
UID:10000538-1775898000-1775912400@www.curefa.org
SUMMARY:Morrow Lacrosse Challenge
DESCRIPTION:
URL:https://give.curefa.org/campaign/763636/donate
LOCATION:The Bryn Mawr School\, 109 West Melrose Avenue\, Baltimore\, MD\, 21210\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260424
DTEND;VALUE=DATE:20260425
DTSTAMP:20260403T220500
CREATED:20260206T194200Z
LAST-MODIFIED:20260206T194200Z
UID:10000526-1776988800-1777075199@www.curefa.org
SUMMARY:Torrance FA Research Reception
DESCRIPTION:
URL:https://www.curefa.org/torrance-fa-research-reception-2026/
LOCATION:Torrance Marriott Redondo Beach\, 3635 Fashion Way\, Torrance\, CA\, 90503\, United States
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Education.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260428T170000
DTEND;TZID=UTC:20260428T210000
DTSTAMP:20260403T220500
CREATED:20260201T211100Z
LAST-MODIFIED:20260327T201628Z
UID:10000528-1777395600-1777410000@www.curefa.org
SUMMARY:Raise A Glass to FARA - Wine Tasting
DESCRIPTION:
URL:https://curefa.org/wine
LOCATION:Gooseneck Vineyards\, 1340 Tower Hill Road\, North Kingstown\, RI\, 02852\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260502T103000
DTEND;TZID=UTC:20260502T103000
DTSTAMP:20260403T220500
CREATED:20250221T215430Z
LAST-MODIFIED:20260318T165323Z
UID:10000461-1777717800-1777717800@www.curefa.org
SUMMARY:rideATAXIA Hometown San Luis Obispo
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-slo-2026/e761697
LOCATION:Mulligan’s Restaurant\, 6460 Ana Bay Rd\, Avila Beach\, California\, 93424\, United States
CATEGORIES:rideATAXIA,rideATAXIA Hometown
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
END:VEVENT
END:VCALENDAR