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UID:10000420-1724932800-1724936400@www.curefa.org
SUMMARY:FA Community Conversations | Genetic Medicine
DESCRIPTION:
URL:https://www.curefa.org/fa-community-conversations-webinar-genetic-medicine-august-2024/
LOCATION:Virtual
CATEGORIES:Education
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SUMMARY:An Informational Webinar hosted by Astellas Pharma
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URL:https://us02web.zoom.us/webinar/register/WN_P7ekyt2YSJavhPVftc0hug#/registration
LOCATION:Virtual
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DTSTART;VALUE=DATE:20240908
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UID:10000020-1725753600-1725839999@www.curefa.org
SUMMARY:Fuzzy Buzzy Charity Golf Tournament
DESCRIPTION:
URL:https://app.eventcaddy.com/events/fuzzy-buzzy-charity-golf-tournament
LOCATION:Windham Country Club\, 1 Country Club Drive\, Windham\, NH\, 03087\, United States
CATEGORIES:Grassroots
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240913
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SUMMARY:Golf-ATAXIA 18 Hole Scramble 2024
DESCRIPTION:
URL:https://give.curefa.org/campaign/golfataxia-2024/c597244
LOCATION:Brentwood Golf Club\, 2450 Havenwood Dr\, White Lake\, Michigan\, 48383
CATEGORIES:Grassroots
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SUMMARY:rideATAXIA Hometown Twin Cities
DESCRIPTION:
URL:https://give.curefa.org/event/ra-hometown-twin-cities-2024/e584593
LOCATION:Wakefield Park Community Building\, 1860 Hazelwood St\, Maplewood\, MN\, 55109\, United States
CATEGORIES:rideATAXIA
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CREATED:20240531T174149Z
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UID:10000407-1726907400-1726927200@www.curefa.org
SUMMARY:Race for Matt & Grace
DESCRIPTION:
URL:https://curefa.org/rfmg
LOCATION:Rhode Island College\, 600 Mount Pleasant Ave.\, Providence\, RI\, 02908
CATEGORIES:Grassroots
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UID:10000422-1726927200-1726938000@www.curefa.org
SUMMARY:rideATAXIA Hometown Ann Arbor
DESCRIPTION:
URL:https://give.curefa.org/team/576856
LOCATION:Dexter\, MI\, 8080 Grand St\, Dexter\, MI\, 48130\, United States
CATEGORIES:rideATAXIA
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_rideATAXIAHometown.png
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CREATED:20240823T204214Z
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UID:10000425-1727179200-1727182800@www.curefa.org
SUMMARY:An Informational Webinar hosted by Lexeo Therapeutics
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_44oWea6PQYy50UeR2lmdlg#/registration
LOCATION:Virtual
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CREATED:20240815T170318Z
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UID:10000421-1727254800-1727283600@www.curefa.org
SUMMARY:6th United Against Ataxia Hill Day
DESCRIPTION:
URL:https://www.curefa.org/get-involved/advocate/current-initiatives/united-against-ataxia-hill-day/
LOCATION:Virtual
CATEGORIES:Advocacy
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CREATED:20240531T174514Z
LAST-MODIFIED:20251209T200327Z
UID:10000408-1727373600-1727388000@www.curefa.org
SUMMARY:Living with Purpose - An Evening to Cure FA 2024
DESCRIPTION:
URL:https://give.curefa.org/purpose
LOCATION:The Owenego\, 40 Linden Ave.\, Branford\, CT\, 06405\, United States
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BEGIN:VEVENT
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CREATED:20240731T205757Z
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UID:10000419-1727546400-1727560800@www.curefa.org
SUMMARY:Drive-In Movie Fundraiser for FARA
DESCRIPTION:
URL:https://give.curefa.org/juipmovie
LOCATION:Parking Lot of FBMJ’s Offices\, 38777 Six Mile Road\, Livonia\, MI\, 48152\, United States
CATEGORIES:Grassroots
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SUMMARY:rideATAXIA Hometown Sunnyvale
DESCRIPTION:
URL:https://give.curefa.org/team/599693
LOCATION:Sunnyvale\, CA\, Sunnyvale\, CA\, United States
CATEGORIES:rideATAXIA
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UID:10000409-1728129600-1728154800@www.curefa.org
SUMMARY:Epic Game Day
DESCRIPTION:
URL:https://give.curefa.org/epicgameday
LOCATION:Natural Twenty Games\, 4136 E Sunset Road\, Henderson\, NV\, 89014
CATEGORIES:Grassroots
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UID:10000021-1728172800-1728259199@www.curefa.org
SUMMARY:rideATAXIA Philly
DESCRIPTION:
URL:https://rideataxia.org/philly
LOCATION:Montgomery County Community College\, 340 DeKalb Pike\, Blue Bell\, PA\, United States
CATEGORIES:rideATAXIA
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DTSTART;VALUE=DATE:20241007
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UID:10000022-1728259200-1728345599@www.curefa.org
SUMMARY:FARA & CHOP FA Symposium
DESCRIPTION:
URL:https://give.curefa.org/event/fara-and-chop-fa-symposium-2024/e590771
LOCATION:Crowne Plaza – King of Prussia\, 260 Mall Boulevard\, King of Prussia\, PA\, United States
CATEGORIES:Education
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CREATED:20241001T144537Z
LAST-MODIFIED:20241001T145417Z
UID:10000427-1729342800-1729357200@www.curefa.org
SUMMARY:#CureFA Baseball Exhibition Game
DESCRIPTION:
URL:https://give.curefa.org/baseball
LOCATION:Bob Warn Field\, 931 N 1st St\, Terre Haute\, IN\, 47807
CATEGORIES:Grassroots
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CREATED:20241001T143831Z
LAST-MODIFIED:20251209T200334Z
UID:10000426-1729875600-1729893600@www.curefa.org
SUMMARY:Mattoberfest 2024
DESCRIPTION:
URL:https://give.curefa.org/fest
LOCATION:Ravenous Brewing Company\, 10 Industrial Road\, Cumberland\, RI\, 02864
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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CREATED:20240725T152559Z
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UID:10000418-1730505600-1730591999@www.curefa.org
SUMMARY:rideATAXIA Dallas
DESCRIPTION:
URL:https://give.curefa.org/event/rideataxia-dallas-2024/e584667
LOCATION:Lewisville Railroad Park\, Lewisville\, TX\, United States
CATEGORIES:rideATAXIA
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DTEND;VALUE=DATE:20241104
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CREATED:20240531T175339Z
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UID:10000410-1730592000-1730678399@www.curefa.org
SUMMARY:Team FARA: TCS New York City Marathon
DESCRIPTION:
URL:https://give.curefa.org/team/567043
LOCATION:Marathon Course\, New York\, NY
CATEGORIES:TeamFARA
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CREATED:20241025T161754Z
LAST-MODIFIED:20241025T161754Z
UID:10000430-1730721600-1730725200@www.curefa.org
SUMMARY:An Informational Webinar hosted by Larimar Therapeutics
DESCRIPTION:
URL:https://us02web.zoom.us/webinar/register/WN_Czdtx8EkTAqx1AFr2uUIFg#/registration
LOCATION:Virtual
CATEGORIES:Education
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241112
DTEND;VALUE=DATE:20241116
DTSTAMP:20260404T123848
CREATED:20240308T111208Z
LAST-MODIFIED:20240308T111208Z
UID:10000024-1731369600-1731715199@www.curefa.org
SUMMARY:International Congress for Ataxia Research (ICAR)
DESCRIPTION:
URL:https://ataxiacongress.org/
LOCATION:Leonardo Royal Hotel London Tower Bridge\, 45 Prescot St\, London\, E1 8GP\, United Kingdom
CATEGORIES:Research
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/events_Research.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241203
DTEND;VALUE=DATE:20241204
DTSTAMP:20260404T123848
CREATED:20241126T161403Z
LAST-MODIFIED:20241202T151445Z
UID:10000431-1733184000-1733270399@www.curefa.org
SUMMARY:Giving Tuesday 2024
DESCRIPTION:
URL:https://give.curefa.org/campaign/giving-tuesday-2024/c641072
LOCATION:Global
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/11/giving-tuesday.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20241206T180000
DTEND;TZID=UTC:20241206T230000
DTSTAMP:20260404T123848
CREATED:20240308T110539Z
LAST-MODIFIED:20241013T145604Z
UID:10000023-1733508000-1733526000@www.curefa.org
SUMMARY:The FARA Energy Ball
DESCRIPTION:
URL:https://www.curefa.org/get-involved/fundraising-and-events/energy-ball/
LOCATION:JW Marriott Tampa Water Street\, 510 Water St\, Tampa\, FL\, United States
CATEGORIES:FARA Energy Ball
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Energy_Ball.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250121T120000
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DTSTAMP:20260404T123848
CREATED:20250103T213652Z
LAST-MODIFIED:20250103T220521Z
UID:10000434-1737460800-1737464400@www.curefa.org
SUMMARY:An Informational Webinar hosted by PTC Therapeutics
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/ptc-therapeutics-informational-webinar-on-january-21-2025/
LOCATION:Virtual
CATEGORIES:Education
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250201T180000
DTEND;TZID=America/New_York:20250201T220000
DTSTAMP:20260404T123848
CREATED:20241017T134812Z
LAST-MODIFIED:20241017T135050Z
UID:10000428-1738432800-1738447200@www.curefa.org
SUMMARY:Runway to the Cure
DESCRIPTION:
URL:https://give.curefa.org/event/runway-to-the-cure-2025/e614377
LOCATION:Banyan Air\, 1710 NW 62 Street\, Fort Lauderdale\, FL\, 33309\, United States
CATEGORIES:Grassroots
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2024/03/Grassroots.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250208T130000
DTEND;TZID=UTC:20250208T173000
DTSTAMP:20260404T123848
CREATED:20241218T175114Z
LAST-MODIFIED:20241218T175400Z
UID:10000432-1739019600-1739035800@www.curefa.org
SUMMARY:FA Research Reception - Chandler\, AZ
DESCRIPTION:
URL:https://www.curefa.org/get-involved/educational-events/phoenix-research-reception-2025/
LOCATION:Hilton Phoenix Chandler\, 2929 West Frye Road\, Chandler\, 85224\, United States
CATEGORIES:Education
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250224
DTEND;VALUE=DATE:20250227
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CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000449-1740355200-1740614399@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-24/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250225
DTEND;VALUE=DATE:20250228
DTSTAMP:20260404T123848
CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000450-1740441600-1740700799@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-25/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250226
DTEND;VALUE=DATE:20250301
DTSTAMP:20260404T123848
CREATED:20250124T160828Z
LAST-MODIFIED:20250207T151757Z
UID:10000451-1740528000-1740787199@www.curefa.org
SUMMARY:Rare Disease Week in D.C.
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c-copy/2025-02-26/
LOCATION:Capitol Hill\, Capitol Hill\, Washington D.C.\, DC\, 20004\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/rare-disease-week-everylife-event-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250227
DTEND;VALUE=DATE:20250301
DTSTAMP:20260404T123848
CREATED:20250124T160821Z
LAST-MODIFIED:20250207T151726Z
UID:10000447-1740614400-1740787199@www.curefa.org
SUMMARY:Rare Disease Day at NIH & FDA
DESCRIPTION:
URL:https://www.curefa.org/event/rare-disease-week-in-d-c/2025-02-27/
LOCATION:Natcher Conference Center\, NIH Building 45\, Bethesda\, MD\, 20894\, United States
CATEGORIES:Advocacy
ATTACH;FMTTYPE=image/png:https://www.curefa.org/wp-content/uploads/2025/01/FDA-NIH-Rare-DIsease-Day.png
END:VEVENT
END:VCALENDAR