Join us in King of Prussia, PA, for the 2025 FA Symposium!

Date: October 12–13, 2025
This symposium will begin with a welcome reception on the evening of Sunday, October 12. The general session and presentations will take place on Monday, October 13.
Time: 7:30AM–4:45PM
Location: Crowne Plaza in King of Prussia, PA.
260 Mall Blvd, King of Prussia, PA 19406
Parking: Complimentary daily self-parking
Topics to be included: Clinical Management, FA Drug Development Pipeline, New Science in FA, and Living with FA Panel
The symposium provides individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community, free of charge.

 

Agenda to follow.
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Hotel Block

Crowne Plaza

260 Mall Blvd., King Of Prussia, PA 19406

To reserve a room in the room block, call 610-265-7500 and mention the group name “Friedreich’s Ataxia Symposium” or click the button below to book your room online. The rate will be $145.00/per night.

To reserve an ADA room please call 610-908-6041 or email jmccown@cpvalleyforge.com

To reserve a room in the block, you must book your room by September 18, 2025.

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Keynote Speaker

Jeremy Cowart: The Light We Let In

Jeremy Cowart is an award-winning photographer, artist, and entrepreneur whose innovative approach to portraiture and storytelling has redefined the art of photography. He is the creator of dynamic 60-second photoshoots, where lighting and backgrounds change in real time, offering a uniquely immersive experience. Jeremy’s work has been featured in TIME, CNN, Netflix, and on TEDx stages, earning global recognition for its creativity and impact. Beyond his artistry, Jeremy is passionate about using his platform to help others, leading humanitarian projects that give voice to underserved communities and tell their stories through powerful visuals. His work inspires both individuals and brands to see creativity as a force for connection and change.

Visit Jeremy's Website
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Make it a FARA weekend at rideATAXIA Philly!

We invite you to join us this fall for an exciting day of riding, walking, rolling, and connecting with the community at rideATAXIA Philly! The event is taking place at Montgomery County Community College in Blue Bell, PA from 7:00AM-1:00PM on October 12.

Register Now!
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Make it Happen CureFA Foundation—FA Symposium Travel Grant

Deadline: August 15, 2025 | Award: Up to $1,000

This year, the Make it Happen CureFA Foundation is proud to offer two grants to support travel to the Friedreich’s Ataxia Symposium. First-time attendees living with FA in the US are eligible to apply for these travel grants.

Learn More
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