Host a screening of The Highest Road Film to raise awareness and funds for Friedreich’s ataxia (FA)!
The Highest Road features Kyle Bryant and Sean Baumstark, two men disabled by Friedreich’s ataxia. The films follow them as they embark on a grueling 200-mile ride up Umling La, the world’s highest road. Supported by a dedicated team, their epic ride mirrors their community’s 30-year battle for a breakthrough drug approval. As the team pedals, they carry the hope of thousands fighting for time, treatment, and a future.
You have the opportunity to share Kyle and Sean’s story with your community to contribute to the goal of raising $500,000 for FARA by hosting a viewing party or a theater screening.
A viewing party is an informal way to share the film with friends either in your home, church or school. This option requires less planning and set-up but allows you to use the film as platform to talk about FA and raise funds to support research.
A theater screening is a structured event that requires more planning but may allow you to invite a larger audience.
Schedule a call with the FARA Director of Grassroots Fundraising (email: ann.musheno@curefa.org) to discuss your event and how FARA can ensure fundraising success by helping with advice, logistics, and a central fundraising website for your event.
Develop a guest list and invite friends via email and social media. Using the template provided, invite friend and family so they are ready to give when they arrive.
Choose Your Venue: our home, church, school, or a local community center are all great options. Decide whether you’d like to include a pre- or post-film reception as part of your event.
Begin promotion of the event through email and social media.
Receive a link to the film that includes a direct ask for donations at the end. Make sure it plays on the system you will be using to show it. Confirm receipt of the DCP at the theater, and that it has been successfully tested.
The FARA staff is here to help you set an event fundraising goal and plan for successful contribution to the campaign goal.
Fill out this form if you’re interested in hosting a screening, or email info@curefa.org with any questions.
