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Non-FARA Funding Opportunities
Non-profit Organizations
National Ataxia Foundation (NAF) – NAF is a non-profit organization whose purpose is to provide programs and services for persons with ataxia and their families. These include several educational resources to connect and inform the greater ataxia community. As well, NAF supports scientific research efforts geared towards developing a cure for ataxia.

Muscular Dystrophy Association (MDA) – MDA is a non-profit organization dedicated to raising funds to support research efforts towards drug development and clinical trials for muscular dystrophy, amyotrophic lateral sclerosis or ALS, and related disorders. MDA also provides services and support to families with affected individuals in the form of medical equipment, support groups and educational seminars.

Ataxia UK – Ataxia UK is a charity in the United Kingdom dedicated to supporting individuals with all types of ataxia. This support includes raising funds for medical research to develop treatments and cures; raising awareness about the needs of individuals with ataxia in the greater public community; and providing advice and resources for individuals and families affected by ataxia.

The Friedreich Ataxia Research Association (fara) Australia – fara Australia is a not for profit organization that raises funds through corporate partnerships and community fundraising in Australia and New Zealand to support biomedical research into treatments and a cure for FA.

American Heart Association (AHA) – Founded in 1924, the AHA is the nation’s largest and oldest organization dedicated to developing treatments and cures against heart disease and stroke. To combat these cardiac diseases, the AHA provides funding for biomedical research, advocates for public health policies and resources, and provides education training and tools to the greater community about heart health. Several funding opportunities are available through the AHA.
U.S. Government Agencies
National Institutes of Health
A principal concern of the NIH is to invest wisely the tax dollars entrusted to it for the support and conduct of biomedical research. This link provides grants and funding opportunities offered by NIH.

NIH is comprised of about 25 separate Institutes and Centers. The Institutes listed below cover one or more symptoms associated with Friedreich's ataxia. You can click on a link to a selected institute to learn more about grant funding and areas of program interest.

Neurological Disorders National Institute for Neurological Disorders and Stroke (NINDS) .
The NIH Institute with primary oversight of biomedical research on FA.
Diabetes National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Hypertrophic Cardiomyopathy National Heart, Lung and Blood Institute (NHLBI)
Genetics National Human Genome Research Institute (NHGRI)
Antioxidants National Institute on Aging
Orthopedics National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Child Development National Institute of Child and Human Development (NICHD)
Hearing Impairment National Institute on Deafness & Other Communication Disorders (NIDCD)
NIH RePORTER NIH RePORTER (Research Portfolio Online Reporting Tools) A searchable repository of NIH-funded biomedical research projects, as well as publications and patents resulting from NIH funding.


Grant program updates and announcements

View special interest RFPs and other grant program updates and announcements here.

Newly awarded grants

Cell & Animal Models

Paola Costantini, PhD - University of Padova, Italy​ Three-dimensional mature cardiac microtissues from human induced pluripotent stem cells to explore mitochondrial dynamics, cardiac function and therapeutic options in Friedreich Ataxia

Gene & Stem Cell Therapy​

Jill Napierala, PhD - University of Alabama at Birmingham​ Regulation of frataxin expression - implications for Friedreich's ataxia therapy​
Helene Puccio, PhD - Institute NeuroMyoGène, Lyon, France​ Defining the therapeutic window and threshold for neuronal gene therapy in Friedreich Ataxia​

Mechanism or Pathway of Disease​

Nadia D'Ambrosi, PhD - University of Rome Tor Vergata, Italy Role of iron-dependent dysfunctions in microglia toxicity
Elisabetta Indelicato, MD, PhD - Medical University of Innsbruck, Austria Hepcidin-Ferroportin axis in Friedreich’s ataxia

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