Jason and Alex Dagley
Name: Jason Dagley
Where do you call home? Frisco, Texas
Education: Some college
How long have you been living (or known you are living) with Friedreich's Ataxia? I have known I have FA since I was 10. My symptoms started around the age of 4-5. I was having difficulty in gym class doing aerobics. My coordination was off. The teacher suggested that I see my doctor. The doctor did some assessments in her office. She suggested that I have further tests done at Scottish Rite Hospital. After a thorough neurological test they really didn't know. In my medical record, it states that it couldn't be FA because my parents are only related by marriage. In the middle of all this we moved to Baton Rouge, Louisiana. We were hooked up with a neurologist at children's hospital in New Orleans. She conducted more tests, nerve and muscle biopsy, EMG, nerve conductions, an MRI and a spinal tap. They even tested my parents with some these. Nothing was conclusive.